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Marissa A Diaz; Fionn Crombie Angus; Jerome E Bickenbach – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities are often left out of research on important topics. This exploratory study investigated their views on barriers and facilitators to accessing care at end of life, both at home and in a hospice setting. Method: This qualitative study used reflexive thematic analysis. Two focus groups were held via…
Descriptors: Intellectual Disability, Affordances, Barriers, Death
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Kim, Go-en; Chung, Soondool – Journal of Applied Research in Intellectual Disabilities, 2016
Background: This study examines the utility of Pearlin's caregiving stress model for understanding the caregiving satisfaction of elderly mothers of adult children with intellectual disability. Methods: Mothers living in Seoul, Kyonggi, and Incheon who were 55 years of age or older and providing care for adult children with intellectual disability…
Descriptors: Foreign Countries, Mothers, Caregivers, Stress Variables