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Improving the Health and Well-Being of Adults with Conditions of a Genetic Origin: "Views from Professionals, Syndrome Support Groups and Parents"
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Redley, Marcus; Pannebakker, Merel; Holland, Anthony – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Advances in medical genetics herald the possibility that health and social care services could be more responsive to the needs arising from a person's genotype. This development may be particularly important for those men and women whose learning disability (known internationally as intellectual disability) is linked to a…
Descriptors: Genetic Disorders, Social Support Groups, Parent Attitudes, Well Being