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Thessa Hilgenkamp; Amy Bodde; Sarah Mann; Brain Helsel; Joseph Sherman; Jessica Danon; Lauren Ptomey – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Online exercise interventions can improve access to tailored programmes for individuals with intellectual disabilities (including Down syndrome). This paper aimed to describe best practices and provide recommendations for online physical activity or exercise programmes for this population. Method: Two research teams with extensive…
Descriptors: Intervention, Intellectual Disability, Down Syndrome, Exercise
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Lin, Elizabeth; Lunsky, Yona; Chung, Hannah; Durbin, Anna; Volpe, Tiziana; Dobranowski, Kristin; Benadict, Mary Benisha; Balogh, Robert – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Rates of death and avoidable deaths are reportedly higher among people with intellectual and developmental disabilities. This study contributes to our understanding of how mortality and intellectual and development disabilities are associated. Method: General population and intellectual and developmental disabilities adult cohorts were…
Descriptors: Death, Intellectual Disability, Developmental Disabilities, Mortality Rate
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Ayse Hümeyra Islamoglu; Gülcan Berkel; Hatice Selin Yildirim; Sule Aktaç; Ferit Bayram; Güleren Sabuncular; Fatma Esra Günes – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Chewing difficulty, poor oral health, inadequate and imbalanced nutrition are serious health problems in individuals with intellectual disabilities. The participants' chewing abilities, oral health and nutritional status were analysed in this study. Methods: Forty-five adult participants with intellectual disabilities were included.…
Descriptors: Dental Health, Intellectual Disability, Psychomotor Skills, Nutrition
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Dominique Grohmann; David Wellsted; Silvana E. Mengoni – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities may experience frailty earlier than the general population. This scoping review aimed to investigate how frailty is defined, assessed, and managed in adults with an intellectual disability; factors associated with frailty; and the potential impact of COVID-19 on frailty identification and…
Descriptors: Intellectual Disability, Adults, COVID-19, Pandemics
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Santoro, Stephanie L.; Donelan, Karen; Constantine, Melissa – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Views can be collected from individuals (self-report) or others on their behalf (proxy-report). Objective: We aimed to review the literature on methods and statistical approaches used to evaluate observer versus self-report responses from individuals with intellectual disability or Down syndrome. Methods: A series of key questions…
Descriptors: Intellectual Disability, Down Syndrome, Statistical Analysis, Data Collection
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Landes, Scott D.; McDonald, Katherine E.; Wilmoth, Janet M.; Carter Grosso, Erika – Journal of Applied Research in Intellectual Disabilities, 2021
Background: This study examines recent trends in the age-at-death disparity between adults with and without intellectual and/or developmental disabilities in the United States. Method: Data were from the 2005-2017 U.S. death certificates. Average age at death was compared between adults whose death certificate did or did not report an intellectual…
Descriptors: Age, Death, Adults, Intellectual Disability
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Jade Dunning; Melanie Hodgkinson; Mark Rose; Warren Dunger – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Adults with intellectual disability, especially those with Down syndrome, are at increased risk of dementia. Whilst memory decline is often considered the earliest symptom, emerging research indicates decline in language, executive function, and non-cognitive domains may also occur early, potentially before memory changes. Method: A…
Descriptors: Adults, Intellectual Disability, Down Syndrome, Dementia
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Amo-Setién, Francisco; Abajas-Bustillo, Rebeca; Sarabia-Cobo, Carmen; Parás-Bravo, Paula; Leal-Costa, César; Redondo-Figuero, Carlos; Bandini, Linda – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Some studies suggest that children and adolescents with intellectual disability (ID) are at elevated risk of obesity. The objective was to determine the prevalence of and factors associated with overweight and obesity among students attending special education schools in Cantabria, Spain. Methods: Cross-sectional design. A sample of n…
Descriptors: Foreign Countries, Obesity, Students with Disabilities, Special Education
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Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K.; Owen, Aleksa – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome (DS),…
Descriptors: Barriers, Down Syndrome, Adults, Autism
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Thompson, Talia; Talapatra, Devadrita; Hazel, Cynthia E.; Coleman, Jeanine; Cutforth, Nicholas – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Down syndrome (DS) is the most common genetic cause of intellectual disability. Prior research has primarily focused on associated medical problems and skill deficits. This study takes a novel positive psychology approach by examining critical individual characteristics and environmental factors that facilitate exceptional quality of…
Descriptors: Down Syndrome, Case Studies, Adults, Well Being
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Ashworth, Maria; Palikara, Olympia; Van Herwegen, Jo – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Although parental stress is higher for children with neurodevelopmental disorders (NDs), it is unclear how this stress compares to more common NDs. The current study compared stress in parents of children with Williams syndrome (WS), Down syndrome (DS) and autism spectrum disorders (ASD). The impact of individual and contextual factors…
Descriptors: Developmental Disabilities, Neurological Impairments, Autism, Pervasive Developmental Disorders
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Hilgenkamp, Thessa Irena Maria; Baynard, Tracy – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Individuals with intellectual disability (ID) have very low physical activity and low peak oxygen uptake (VO[subscript 2peak]), potentially explained by physiologically lower peak heart rates (HR[subscript peak]). Method: The present authors performed a retrospective analysis of a large data set of individuals with intellectual…
Descriptors: Physiology, Down Syndrome, Intellectual Disability, Physical Activity Level
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Saldarriaga, Wilmar; Ruiz, Fabian Andres; Tassone, Flora; Hagerman, Randi – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Down syndrome (DS) and Fragile X syndrome (FXS) are the major genetic causes of intellectual disabilities. Here, we present a case of a 32-year-old woman with the diagnosis of both FXS and DS. She is the daughter of a 47-year-old pre-mutation woman who also has three sons with FXS. Methods: Cytogenetic testing detected the presence of…
Descriptors: Down Syndrome, Genetic Disorders, Intellectual Disability, Females
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McPaul, Ann; Walker, Brigid; Law, Jim; McKenzie, Karen – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Neuropsychological tests of memory are believed to offer the greatest sensitivity at identifying people at the risk of developing dementia. There is a paucity of standardized and appropriate neuropsychological assessments of memory for adults with an intellectual disability. This study examines how adults with an intellectual…
Descriptors: Adults, Intellectual Disability, Visual Perception, Correlation
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O' Shea, Muireann; O' Shea, Carol; Gibson, Louise; Leo, Jennifer; Carty, Catherine – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Overweight and obesity is a growing concern among individuals with intellectual disabilities; however, little is known about the prevalence among children and youth with Down syndrome (CYDS). The purpose of this study was to determine the prevalence of overweight/obesity among CYDS in South West Ireland. Methods: This cross-sectional…
Descriptors: Incidence, Obesity, Down Syndrome, Intellectual Disability
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