Background: The global rise in chronic health conditions highlights the importance of self-management in empowering people to actively participate in their healthcare. People with intellectual disabilities are disproportionately affected by these conditions and face barriers in accessing self-management interventions. Method: This scoping review…

Background: Women labelled with intellectual disabilities face high rates of social exclusion and sexual violence, with limited research and few services tailored to their needs. Peer support offers many benefits including recognition of diverse lived experiences and nonprofessional perspectives. This article highlights collaborative efforts of…

Background: Parents with intellectual disability experience high rates of child removal, which affects their well-being. Method: Participatory action research (PAR) was undertaken with eight parents with intellectual disability who had children removed from their care. Parents were interviewed before and after the PAR. Three themes emerged: a safe…

Background: The COVID-19 pandemic precipitated a rapid roll-out of virtual health care services to people with intellectual disabilities. Limited evidence is available for clinicians to guide virtual care delivery. Method: Twenty-three studies were identified through systematic searching of 16 databases. Extracted data were mapped to the NSW…

Background: This study evaluated the Step-by-Step Parenting Program (SBSPP) to prepare expectant parents with intellectual disabilities to care for their newborns. Method: Two expectant parents with intellectual disabilities were seen once or twice weekly in their homes for about 2 h over 16 and 20 weeks (21 and 27 sessions), respectively. The key…

Background: Individuals with fetal alcohol spectrum disorder (FASD) experience complex needs that often necessitate support from multiple systems. There is growing evidence that people with FASD may benefit from integrated service delivery (ISD), but little is known about ISD elements and processes for this population. Method: Using a multi-method…

Background: People with Down syndrome (DS) are predisposed to challenges with executive functions (EF), which are crucial for adaptive outcomes and academic success. Early interventions targeting EF are therefore critical. The present study analysed Italian data on the acceptability, enjoyability and household implementation of EXPO (EXecutive…

Background: The Australian National Disability Insurance Scheme (NDIS) represents a significant shift in service funding for children with hereditary or congenital cognitive disabilities. This PRISMA-based scoping review identifies and maps the NDIS literature to display research gaps and priorities for this cohort. Method: Twenty-nine databases…

Background: Children with mild intellectual disabilities in Malaysia often lack structured, tailored sexuality education. Existing national resources are broad and not diagnosis-specific. This study developed and validated sexuality education guidelines and an activity kit for parents of children aged 4-12 years with mild intellectual…

Background: People with intellectual disability in Chile face individual and collective barriers to social participation. Lack of knowledge about their rights and tools for effective self-advocacy seem to be key elements that need to be improved to facilitate participation. Method: We present PaísDI, a 16 h long manualised program created by…

Background: We evaluated a transition to retirement intervention that adapted strategies used to support employment of people with intellectual disability in mainstream workplaces. The intervention facilitated their independent participation in mainstream community groups and volunteering. Methods: We randomised 29 older Australians who…

Background: Collaborative storytelling can be a helpful tool to promote cognitive and social skills in adolescents with neurodevelopmental disorders. Aims: The current study aimed to explore the benefits of collaborative storytelling using traditional (TST), digital (DST), and tangible digital (TDST) methodologies. Materials and Methods: Fourteen…

Background: Parents experience difficulties supporting children with intellectual disabilities when they exit the school system. One promising way to mitigate this problem is to set up school-based parent support groups. This study aimed to examine the development and feasibility of school-based parent support groups in South Korea designed to…

Background: Staff supporting people with intellectual disabilities may experience work-related stress that adversely impacts their wellbeing and capacity to provide support. Acceptance and Commitment Training interventions like Promotion of Acceptance in Carers and Teachers (PACT) have been shown to be effective for reducing stress and promoting…

Background: With increasing reductions in funding for social care across many countries, the need to ensure that resources are used to best effect is becoming increasingly important, in particular for those with severe and complex needs. Methods: In order to explore the outcomes and costs of skilled support for this group of people, quality of…