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Amenable Deaths among Adults with Intellectual and Developmental Disabilities Including Down Syndrome: An Ontario Population-Based Cohort Study
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Lin, Elizabeth; Lunsky, Yona; Chung, Hannah; Durbin, Anna; Volpe, Tiziana; Dobranowski, Kristin; Benadict, Mary Benisha; Balogh, Robert – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Rates of death and avoidable deaths are reportedly higher among people with intellectual and developmental disabilities. This study contributes to our understanding of how mortality and intellectual and development disabilities are associated. Method: General population and intellectual and developmental disabilities adult cohorts were…
Descriptors: Death, Intellectual Disability, Developmental Disabilities, Mortality Rate
Evidence of Continued Reduction in the Age-at-Death Disparity between Adults with and without Intellectual and/or Developmental Disabilities
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Landes, Scott D.; McDonald, Katherine E.; Wilmoth, Janet M.; Carter Grosso, Erika – Journal of Applied Research in Intellectual Disabilities, 2021
Background: This study examines recent trends in the age-at-death disparity between adults with and without intellectual and/or developmental disabilities in the United States. Method: Data were from the 2005-2017 U.S. death certificates. Average age at death was compared between adults whose death certificate did or did not report an intellectual…
Descriptors: Age, Death, Adults, Intellectual Disability
Direct Care Workers' Experiences of Grief and Needs for Support
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Gray, Jennifer A.; Kim, Jinsook – Journal of Applied Research in Intellectual Disabilities, 2017
Background: A paucity of information is available on direct care workers' (DCWs') experiences with loss when their clients (people with intellectual and developmental disabilities [I/DD]) die. This study explored DCWs' grief experiences, their coping methods and their needs for support. Methods: A thematic analysis approach was used to examine…
Descriptors: Grief, Caregivers, Death, Intellectual Disability
Mortality of People with Intellectual and Developmental Disabilities from Select US State Disability Service Systems and Medical Claims Data
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Lauer, Emily; McCallion, Philip – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Monitoring population trends including mortality within subgroups such as people with intellectual and developmental disabilities and between countries provides crucial information about the population's health and insights into underlying health concerns and the need for and effectiveness of public health efforts. Methods: Data from…
Descriptors: Mortality Rate, Death, Mental Retardation, Developmental Disabilities
Understanding Information about Mortality among People with Intellectual and Developmental Disabilities in Canada
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Ouellette-Kuntz, Hélène; Shooshtari, Shahin; Balogh, Robert; Martens, Patricia – Journal of Applied Research in Intellectual Disabilities, 2015
Background: This paper reviews what is currently known about mortality among Canadians with intellectual and developmental disabilities and describes opportunities for ongoing monitoring. Methods: In-hospital mortality among adults with intellectual and developmental disabilities in Ontario was examined using hospital data. Mortality was compared…
Descriptors: Foreign Countries, Mental Retardation, Developmental Disabilities, Mortality Rate
"Well the Future, That Is Difficult": A Hermeneutic Phenomenological Analysis Exploring the Maternal Experience of Parenting a Young Adult with a Developmental Disability
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Thackeray, Lisa A.; Eatough, Virginia – Journal of Applied Research in Intellectual Disabilities, 2015
Background: The predominant focus of extant literature exploring maternal experience of developmental disability has been stress, adaptation, efficacy of interventions and the burden of care. Most studies involve mothers of children, with scant attention given to what life is like later. This study qualitatively explores the experience of mothers…
Descriptors: Hermeneutics, Phenomenology, Trust (Psychology), Semi Structured Interviews