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Direct linkTuffrey-Wijne, Irene; Finlayson, Janet; Bernal, Jane; Taggart, Laurence; Lam, Claire Kar Kei; Todd, Stuart – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…
Descriptors: Death, Adults, Terminal Illness, Grief
Robertson, Janet; Baines, Susannah; Emerson, Eric; Hatton, Chris – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Constipation can lead to serious health issues and death. This systematic review summarizes international research pertaining to the management of constipation in people with intellectual disability. Method: Studies published from 1990 to 2017 were identified using Medline, Cinahl, PsycINFO, Web of Science, email requests and…
Descriptors: Physiology, Intervention, Drug Therapy, Eating Habits
Tuffrey-Wijne, Irene; Rose, Tracey; Grant, Robert; Wijne, Astrid – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Many people with intellectual disabilities are affected by death, yet conversations about death are often avoided by staff working with them. This study aimed to assess staff training needs and to develop, trial and evaluate a training course on communicating about death and dying. Method:(i) Semi-structured interviews with 20 staff in…
Descriptors: Intellectual Disability, Death, Caregiver Role, Caregiver Training
