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Direct linkAmy E. Bodde; Joanna Veazey Brooks; Bethany Forseth; Tara Wolfe; Kristine Williams; Lauren T. Ptomey – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Family caregivers of adults with Down syndrome often provide life-long caregiving support for their loved one. Long-term caregiving can impact caregivers' health and well-being, yet their experiences and support needs are underexplored. Method: Semi-structured interviews were conducted with caregivers of adults with Down syndrome to…
Descriptors: Adults, Down Syndrome, Caregivers, Experience
Kasey Fullwood; Andrew Collaro; Lachlan Power; Jasneek Chawla – Journal of Applied Research in Intellectual Disabilities, 2025
Introduction: Children with Down Syndrome are more likely to experience sleep issues throughout their life compared to typically developing children. Sleep difficulties also affect caregivers, who are at increased risk of sleep disturbances, mood disturbances and poorer wellbeing. However, the impact of poor sleep in this cohort of children on…
Descriptors: Down Syndrome, Children, Sleep, Quality of Life
Santoro, Stephanie L.; Campbell, Ashlee; Cottrell, Clorinda; Donelan, Karen; Majewski, Ben; Oreskovic, Nicolas M.; Patsiogiannis, Vasiliki; Torres, Amy; Skotko, Brian G. – Journal of Applied Research in Intellectual Disabilities, 2021
Purpose: People with Down syndrome (DS) have a unique medical profile which may impact views of health. We aimed to explore the use of global health measures in DS. Methods: Prospective survey in the Mass General Hospital Down Syndrome Program (MGH DSP) from December 2018 to July 2019 with Patient Reported Outcomes Measurement Information System…
Descriptors: Down Syndrome, Adolescents, Adults, Caregivers
Celik, Pelin; Kara Uzun, Aysun – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Previous studies have focused mostly on the negative experiences of parents of children with Down syndrome. We aimed to explore both the stressful experiences and coping strategies of parents from a non-Western country. Methods: Twenty-six parents of children aged 8-48 months with Down syndrome were included. Semi-structured interviews…
Descriptors: Stress Variables, Parent Attitudes, Parent Child Relationship, Down Syndrome
Mihaila, Iulia; Handen, Benjamin L.; Christian, Bradley T.; Hartley, Sigan L. – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Leisure activity has been linked to optimal ageing outcomes, yet little is known about the type and level of leisure activity adults with Down syndrome currently engage in, and the factors that promote and hinder their leisure activities. Materials and Methods: A daily diary was utilized to provide an in-depth description of the…
Descriptors: Adults, Down Syndrome, Barriers, Leisure Time
Hutchinson, Nick; Oakes, Peter – Journal of Applied Research in Intellectual Disabilities, 2011
Background: People with Down Syndrome are at significant risk of developing Alzheimer's disease as they get older and early assessment, diagnosis and intervention is essential. Neuro-psychological measures of cognitive functioning play an important part in the assessment process. The aim of the present study was to examine the concurrent criterion…
Descriptors: Down Syndrome, Adults, Alzheimers Disease, Cognitive Tests
De Falco, Simona; Esposito, Gianluca; Venuti, Paola; Bornstein, Marc H. – Journal of Applied Research in Intellectual Disabilities, 2010
Background: Through play children exercise their emerging mental abilities, and for their part, when in collaborative play, caregivers often adjust their behaviours to assist their children's progress. In this study, we focused on comparisons between play of Down Syndrome (DS) children with their two parents as well as on comparisons between the…
Descriptors: Play, Mothers, Caregivers, Down Syndrome
Mason, Linda; Cunningham, Cliff – Journal of Applied Research in Intellectual Disabilities, 2009
Background: Prevalence of pre-menstrual syndrome (PMS) may be higher in women with Down syndrome due to syndrome specific characteristics in biochemistry, psychopathology and lifestyle. Recognition of PMS may be difficult for women with intellectual disabilities and their carers. Method: A daily diary, used to diagnose PMS with typical women, was…
Descriptors: Research Tools, Females, Mental Retardation, Down Syndrome
Kalsy, Sunny; Heath, Rebecca; Adams, Dawn; Oliver, Chris – Journal of Applied Research in Intellectual Disabilities, 2007
Background: Whereas there is a knowledge base on staff attributions of challenging behaviour, there has been little research on the effects of training, type of behaviour and biological context on staff attributions of controllability in the context of people with intellectual disabilities and dementia. Methods: A mixed design was used to…
Descriptors: Mental Retardation, Dementia, Down Syndrome, Behavior Problems
