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Communicating about Death and Dying with Adults with Intellectual Disabilities Who Are Terminally Ill or Bereaved: A UK-Wide Survey of Intellectual Disability Support Staff
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Tuffrey-Wijne, Irene; Finlayson, Janet; Bernal, Jane; Taggart, Laurence; Lam, Claire Kar Kei; Todd, Stuart – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…
Descriptors: Death, Adults, Terminal Illness, Grief
Communicating about Death and Dying: Developing Training for Staff Working in Services for People with Intellectual Disabilities
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Tuffrey-Wijne, Irene; Rose, Tracey; Grant, Robert; Wijne, Astrid – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Many people with intellectual disabilities are affected by death, yet conversations about death are often avoided by staff working with them. This study aimed to assess staff training needs and to develop, trial and evaluate a training course on communicating about death and dying. Method:(i) Semi-structured interviews with 20 staff in…
Descriptors: Intellectual Disability, Death, Caregiver Role, Caregiver Training
Impact of Training on Cognitive Representation of Challenging Behaviour in Staff Working with Adults with Intellectual Disabilities
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Campbell, Martin; Hogg, James – Journal of Applied Research in Intellectual Disabilities, 2008
Background: Cognitive representations of challenging behaviour among staff may influence therapeutic outcomes. This study looked at how cognitive dimensions of Identity, Cause, Consequences, Emotional Reaction and Treatment/Control are affected by training. Materials and Methods: A theoretically derived questionnaire was used to measure the impact…
Descriptors: Experimental Groups, Control Groups, Mental Retardation, Adults