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Quality of Health Care According to People with Down Syndrome, Their Parents and Support Staff--A Qualitative Exploration
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van den Driessen Mareeuw, Francine A.; Coppus, Antonia M. W.; Delnoij, Diana M. J.; de Vries, Esther – Journal of Applied Research in Intellectual Disabilities, 2020
Background: People with Down syndrome (PDS) have complex healthcare needs. Little is known about the quality of health care for PDS, let alone how it is appraised by PDS and their caregivers. This study explores the perspectives of PDS, their parents and support staff regarding quality in health care for PDS. Method: The present authors conducted…
Descriptors: Down Syndrome, Health Services, Attitudes, Parent Attitudes
Assessment of Prevalence of Persons with Down Syndrome: A Theory-Based Demographic Model
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de Graaf, Gert; Vis, Jeroen C.; Haveman, Meindert; van Hove, Geert; de Graaf, Erik A. B.; Tijssen, Jan G. P.; Mulder, Barbara J. M. – Journal of Applied Research in Intellectual Disabilities, 2011
Background: The Netherlands are lacking reliable empirical data in relation to the development of birth and population prevalence of Down syndrome. For the UK and Ireland there are more historical empirical data available. A theory-based model is developed for predicting Down syndrome prevalence in the Netherlands from the 1950s onwards. It is…
Descriptors: Medical Services, Mortality Rate, Down Syndrome, Pregnancy