Background: This study investigates the healthcare needs and experiences of adults with intellectual disabilities, focusing on identifying areas for improvement. Its innovation lies in including individuals with intellectual disabilities as co-researchers in the research process. Method: Thematic analysis was performed on five focus groups with 30…

Background: Individuals with intellectual disabilities are at increased risk of mental health disorders, but may struggle to access appropriate services. While assessment/treatment may need to be adapted, knowledge is limited about what such adaptations may entail. Method: During a service development project, the participants (33 professionals,…

Background: Australia's National Disability Insurance Scheme (NDIS) funds individualised supports to increase choice and control. The relationship between NDIS individualised funding, outcomes for wellbeing and exercising choice and control for people with intellectual disability has been unclear. Method: Adult NDIS participants with intellectual…

Introduction: Many students with intellectual/developmental disabilities (I/DD) and co-occurring communication challenges have trouble accessing mental health services, especially traditional talk therapies. Methods: This study is based on interviews with 19 school mental health providers (MHPs), speech-language therapists (SLPs), and…

Background: Engagement of individuals with an intellectual disability and their caregivers in health care has been highlighted as an essential factor in developing services that better meet client needs; however, few studies have focused on the engagement of individuals with a dual diagnosis (intellectual disability co-occurring with a mental…

Background: Health awareness is an important factor in preventive health and healthy lifestyles of children and adolescents with an intellectual disability. The research objective is therefore to explore the perspective of people with intellectual disability regarding their health-related experiences and the meanings they assign to health.…

Background: Feeding is an important health consideration for children with Down syndrome due to their increased risks for feeding challenges and overweight/obesity. Healthcare providers play an important role in providing feeding guidance to families; however, there is limited research on feeding children with Down syndrome and the role of…

Background: There is little research that has examined what support strategies are effective to help adults with intellectual disabilities take their prescribed medication correctly. The aim of the study was to gain an understanding of the barriers and supports that contribute to adults with intellectual disabilities self-managing their prescribed…

Background: People with intellectual disability face numerous barriers to accessing basic preventative health care. This study documents the protocol, process and health outcomes of a multidisciplinary hospital-based Health Care Access Service providing pre-procedure sedation and general anaesthesia for adults with moderate to profound…

Background: The COVID-19 pandemic precipitated a rapid roll-out of virtual health care services to people with intellectual disabilities. Limited evidence is available for clinicians to guide virtual care delivery. Method: Twenty-three studies were identified through systematic searching of 16 databases. Extracted data were mapped to the NSW…

Background: This review explored (1) what digital psychological wellbeing interventions for family carers of people with intellectual and developmental disabilities were reported in the literature, (2) evidence about their effectiveness, (3) factors affecting their implementation and (4) experiences of family carers who attend them. Methods: Seven…

Introduction: Children with Down Syndrome are more likely to experience sleep issues throughout their life compared to typically developing children. Sleep difficulties also affect caregivers, who are at increased risk of sleep disturbances, mood disturbances and poorer wellbeing. However, the impact of poor sleep in this cohort of children on…

Background: Workers in the intellectual disability sector encounter significant work-related stress impacting their mental health. This study explores the barriers faced by these workers when accessing mental health support during the pandemic. Methods: 1831 surveys were completed by intellectual disability support workers from Ontario, Canada…

Background: Breast cancer is as frequent in women with intellectual disabilities as the general population, but the mammography uptake rate for women with intellectual disabilities is almost a third lower. This meta-synthesis aimed to explore physical and psychosocial barriers to mammography access for women with intellectual disabilities from the…

Background: Parents of children with moderate to profound intellectual disabilities play a crucial role in providing direct care but often demonstrate heightened parental stress and reduced quality of life. This review explores perceived quality of life from the experiences of parents when caring for young and adult children. Method: A qualitative…