Background: People with intellectual disabilities are rarely involved in end-of-life decisions. This study investigated and further developed approaches and resources to enable inclusive end-of-life care planning. Methods: A multi-centre, multi-method four-phase study, involving 195 researchers, participants, advisors and co-design members,…

Background: Canadians with intellectual disabilities experience barriers in accessing federal government services and programmes. Evolving from established models of patient navigation, service navigation has emerged as a potential way to address systematic barriers. Methods: A scoping review was conducted with a search strategy implemented across…

Background: Behaviour supports plans (BSP), if accurately implemented, have been found to increase skills and decrease behaviours that challenge for individuals with intellectual disabilities. However, skills acquired by staff during trainings on BSPs often fail to transfer into effective implementation. The current study aimed to examine barriers…

Introduction: The "Programma Perspectief" intervention aims to provide optimal support to people with profound intellectual and multiple disabilities. Knowledge concerning intervention fidelity is outdated and scarce as is typical for the support of persons with special needs. Methods: An survey amongst care professionals (n = 62)…

Background: The global rise in chronic health conditions highlights the importance of self-management in empowering people to actively participate in their healthcare. People with intellectual disabilities are disproportionately affected by these conditions and face barriers in accessing self-management interventions. Method: This scoping review…

Background: Sexual violence against women with intellectual disabilities is complex and often underreported due to systemic, social, and cultural barriers. The purpose of this paper is to analyze the cultural conditions regarding the sexuality of women with intellectual disabilities that significantly limit the disclosure of sexual violence…

Background: People with intellectual disabilities in Flanders (Belgium) often rely on their direct support professionals (DSPs) to engage in meaningful activities. While structured approaches exist to guide engagement, limited insight is available into the specific support DSPs need in practice. Methods: A descriptive qualitative study was…

Background: Even though becoming a parent and forming meaningful relationships are considered fundamental rights, research shows that there are significant barriers for people with intellectual disabilities within these social roles, as they are still seen as unfit for parenthood. Given limited research knowledge about the reproductive…

Objective: The present study aimed to understand the effectiveness of natural setting interventions to increase the level of PA in older adults ([greater than or equal to] 40 years old) with intellectual disabilities. Method: Following PRISMA's most recent guidelines, a systematic review was used to synthesise research on PA interventions…

Background: People with intellectual disabilities have equal rights to explore their sexuality and access sexual and reproductive healthcare, yet little is known about their needs and wants when accessing health education. The current study sought to learn about the sexual health interests, attitudes, and educational needs of Special Olympics (SO)…

Background: Assistive technology (AT) has been successfully used by researchers and practitioners to increase task completion and independence in work and home environments for individuals with intellectual and developmental disabilities. While prior research has shown increased outcomes of incorporating AT into daily tasks, research has also…

Background: Little research has been conducted solely exploring gender diversity in people with intellectual disabilities. This review explores the literature, discusses the prevalence, and identifies clinical best practices for people at the intersection of gender diversity and intellectual disability. Method: A scoping review was conducted…

Background: This study examined the paternal role of fathers from families headed by parents with intellectual disabilities, their views and their barriers and facilitators in fulfilling this role. Method: Nine fathers of families headed by parents with intellectual disabilities and 14 professionals were interviewed. Transcriptions were coded…

Background: There is little research that has examined what support strategies are effective to help adults with intellectual disabilities take their prescribed medication correctly. The aim of the study was to gain an understanding of the barriers and supports that contribute to adults with intellectual disabilities self-managing their prescribed…

Background and Aims: The internet and social media are increasingly accessible to people with intellectual disabilities, offering significant benefits but also posing unique challenges and risks. This study aimed to explore the online experiences of adults with intellectual disabilities in England. Methods: An accessible survey was conducted from…