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Sarah H. Ailey; Molly Bathje; Renáta Tichá; Brian Abery; Belle K. Khuu; Lisa Angel – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual and developmental disabilities are among the most underserved in an inequitable healthcare system. Methods: Using Arksey and O'Malley's methodology and a social determinants of health framework, we conducted a scoping review of literature on the state of practice in education of healthcare professionals in the…
Descriptors: Allied Health Personnel, Intellectual Disability, Developmental Disabilities, Access to Health Care
A. Miceli; L. Lucassen; R. Rinaldi; N. Van Ooteghem; D. Walter; M. Perau; C. Kahwaji; A. Mayart; E. Batselé – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study investigates the healthcare needs and experiences of adults with intellectual disabilities, focusing on identifying areas for improvement. Its innovation lies in including individuals with intellectual disabilities as co-researchers in the research process. Method: Thematic analysis was performed on five focus groups with 30…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Health Needs
Kjersti Karlsen; Ellen Kathrine Munkhaugen; Hanne Kari Fossum; Trine Lise Bakken; Arvid Nikolai Kildahl – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Individuals with intellectual disabilities are at increased risk of mental health disorders, but may struggle to access appropriate services. While assessment/treatment may need to be adapted, knowledge is limited about what such adaptations may entail. Method: During a service development project, the participants (33 professionals,…
Descriptors: Intellectual Disability, Mental Health, Comorbidity, Adults
Vivienne Riches; Trevor Parmenter; Gisselle Gallego; Ziad Al-Rubaie; Mary-Ann O'Donovan; Patricia O'Brien – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Australia's National Disability Insurance Scheme (NDIS) funds individualised supports to increase choice and control. The relationship between NDIS individualised funding, outcomes for wellbeing and exercising choice and control for people with intellectual disability has been unclear. Method: Adult NDIS participants with intellectual…
Descriptors: Well Being, Decision Making, Correlation, Intellectual Disability
Eve Müller; Kelly Offutt; Michael Stromberg; Ann Kern; Jessica Oginz – Journal of Applied Research in Intellectual Disabilities, 2025
Introduction: Many students with intellectual/developmental disabilities (I/DD) and co-occurring communication challenges have trouble accessing mental health services, especially traditional talk therapies. Methods: This study is based on interviews with 19 school mental health providers (MHPs), speech-language therapists (SLPs), and…
Descriptors: School Health Services, Mental Health, Speech Therapy, Students with Disabilities
Andrea Almas; Rosemary Lysaght; Susan Farrell; Lorrie Heffernan – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Engagement of individuals with an intellectual disability and their caregivers in health care has been highlighted as an essential factor in developing services that better meet client needs; however, few studies have focused on the engagement of individuals with a dual diagnosis (intellectual disability co-occurring with a mental…
Descriptors: Intellectual Disability, Caregivers, Health Services, Comorbidity
Beata Gumienny; Aneta Lew-Koralewicz – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Health awareness is an important factor in preventive health and healthy lifestyles of children and adolescents with an intellectual disability. The research objective is therefore to explore the perspective of people with intellectual disability regarding their health-related experiences and the meanings they assign to health.…
Descriptors: Adolescents, Intellectual Disability, Foreign Countries, Secondary School Students
Emma Marston; Kris Pizur-Barnekow; Natalie S. McAndrew; Lucy Mkandawire-Valhmu; Michele Polfuss – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Feeding is an important health consideration for children with Down syndrome due to their increased risks for feeding challenges and overweight/obesity. Healthcare providers play an important role in providing feeding guidance to families; however, there is limited research on feeding children with Down syndrome and the role of…
Descriptors: Down Syndrome, Children, Eating Habits, Allied Health Personnel
Natasha A. Spassiani; Anna Higgins; Stephan Tait; Aaron Hume; Sam Abdulla; Ruth Paterson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There is little research that has examined what support strategies are effective to help adults with intellectual disabilities take their prescribed medication correctly. The aim of the study was to gain an understanding of the barriers and supports that contribute to adults with intellectual disabilities self-managing their prescribed…
Descriptors: Drug Therapy, Health Behavior, Adults, Intellectual Disability
Burton, Holly; Gordon, Kim – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Government restrictions enforced globally in response to COVID-19 necessitated changes to the delivery of mental health services, with many psychology professionals (PPs) forced to transfer their face-to-face practice to virtual means (telephone/video therapy) overnight. This review explores what is known about the experiences of PPs…
Descriptors: Intellectual Disability, COVID-19, Pandemics, Mental Health
Michelle Bellon; Farima Forooziya; Rodney Mitchell; Sharon Liberali; Monica Welsh; Paul Jones; Stephanie Searle – Journal of Applied Research in Intellectual Disabilities, 2025
Background: People with intellectual disability face numerous barriers to accessing basic preventative health care. This study documents the protocol, process and health outcomes of a multidisciplinary hospital-based Health Care Access Service providing pre-procedure sedation and general anaesthesia for adults with moderate to profound…
Descriptors: Access to Health Care, Program Implementation, Hospitals, Anesthesiology
Ayse Hümeyra Islamoglu; Gülcan Berkel; Hatice Selin Yildirim; Sule Aktaç; Ferit Bayram; Güleren Sabuncular; Fatma Esra Günes – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Chewing difficulty, poor oral health, inadequate and imbalanced nutrition are serious health problems in individuals with intellectual disabilities. The participants' chewing abilities, oral health and nutritional status were analysed in this study. Methods: Forty-five adult participants with intellectual disabilities were included.…
Descriptors: Dental Health, Intellectual Disability, Psychomotor Skills, Nutrition
Dawn E. Cavanagh; Ruth Northway; Stuart Todd – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Little is known about how health issues identified at the annual health check (AHC) are followed up and addressed, how participants self-manage their health in between AHCs, and what support they receive. This research aimed to explore this. Methods: People with intellectual disabilities (n = 12), and/or their supporters residing in…
Descriptors: Intellectual Disability, Physical Examinations, Access to Health Care, Barriers
Alison Devitt; Melissa Nott; Stephanie Nelson; Julia Sgarlata; Michelle Gray; Srilaxmi Balachandran; Asma Taskin – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The COVID-19 pandemic precipitated a rapid roll-out of virtual health care services to people with intellectual disabilities. Limited evidence is available for clinicians to guide virtual care delivery. Method: Twenty-three studies were identified through systematic searching of 16 databases. Extracted data were mapped to the NSW…
Descriptors: COVID-19, Pandemics, Access to Health Care, Program Effectiveness
Magda M. Apanasionok; Andreas Paris; Joanna Griffin; Richard P. Hastings; Ellie Finch; Debbie Austin; Samantha Flynn – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This review explored (1) what digital psychological wellbeing interventions for family carers of people with intellectual and developmental disabilities were reported in the literature, (2) evidence about their effectiveness, (3) factors affecting their implementation and (4) experiences of family carers who attend them. Methods: Seven…
Descriptors: Child Caregivers, Intellectual Disability, Developmental Disabilities, Intervention

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