Publication Date
| In 2026 | 0 |
| Since 2025 | 0 |
| Since 2022 (last 5 years) | 0 |
| Since 2017 (last 10 years) | 4 |
| Since 2007 (last 20 years) | 5 |
Descriptor
| Death | 5 |
| Foreign Countries | 5 |
| Intellectual Disability | 4 |
| Adults | 2 |
| Allied Health Personnel | 1 |
| Caregiver Attitudes | 1 |
| Caregiver Training | 1 |
| Caregivers | 1 |
| Cognitive Processes | 1 |
| Communication Skills | 1 |
| Coping | 1 |
| More ▼ | |
Source
| Journal of Applied Research… | 5 |
Author
| Bernal, Jane | 5 |
| Todd, Stuart | 4 |
| Hunt, Katherine | 3 |
| Shearn, Julia | 3 |
| Worth, Rhian | 3 |
| Jones, Edwin | 2 |
| Lowe, Kathy | 2 |
| McCarron, Mary | 2 |
| Tuffrey-Wijne, Irene | 2 |
| Barr, Owen | 1 |
| Brearley, Sarah | 1 |
| More ▼ | |
Publication Type
| Journal Articles | 5 |
| Reports - Research | 5 |
Education Level
Audience
Location
| United Kingdom | 4 |
| United Kingdom (England) | 1 |
Laws, Policies, & Programs
Assessments and Surveys
What Works Clearinghouse Rating
Peer reviewed
Direct linkBernal, Jane; Hunt, Katherine; Worth, Rhian; Shearn, Julia; Jones, Edwin; Lowe, Kathy; Todd, Stuart – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Considerable attention is rightly paid to preventable deaths in adults with intellectual disabilities. The pattern of these deaths and the implications for services have been less considered. Method: This paper forms part of a larger cross-sectional study of deaths in a defined population of adults with intellectual disabilities. Data…
Descriptors: Foreign Countries, Death, Adults, Intellectual Disability
Todd, Stuart; Bernal, Jane; Worth, Rhian; Shearn, Julia; Brearley, Sarah; McCarron, Mary; Hunt, Katherine – Journal of Applied Research in Intellectual Disabilities, 2021
Background: This paper concerns mortality and needs for end-of-life care in a population of adults with ID living in generic care homes. Methods: Various sampling strategies were used to identify a difficult to find a population of people with ID in generic care homes. Demographic and health data were obtained for 132 people with ID. This included…
Descriptors: Foreign Countries, Death, Intellectual Disability, Older Adults
Todd, Stuart; Bernal, Jane; Shearn, Julia; Worth, Rhian; Jones, Edwin; Lowe, Kathy; Madden, Phil; Barr, Owen; Forrester Jones, Rachel; Jarvis, Paul; Kroll, Thilo; McCarron, Mary; Read, Sue; Hunt, Katherine – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Population-based data are presented on the nature of dying in intellectual disability services. Methods: A retrospective survey was conducted over 18 months with a sample of UK-based intellectual disability service providers that supported over 12,000. Core data were obtained for 222 deaths within this population. For 158 (71%) deaths,…
Descriptors: Foreign Countries, Death, Intellectual Disability, Mortality Rate
Tuffrey-Wijne, Irene; Finlayson, Janet; Bernal, Jane; Taggart, Laurence; Lam, Claire Kar Kei; Todd, Stuart – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…
Descriptors: Death, Adults, Terminal Illness, Grief
Tuffrey-Wijne, Irene; Giatras, Nikoletta; Butler, Gary; Cresswell, Amanda; Manners, Paula; Bernal, Jane – Journal of Applied Research in Intellectual Disabilities, 2013
Background: There is insufficient evidence to guide decisions around (non-)disclosure of bad news of life-limiting illness and death to people with intellectual disabilities. Aim: The aim of this study was to develop guidelines for decisions about (non-)disclosure of bad news around life-limiting illness and death to people with intellectual…
Descriptors: Guidelines, Disclosure, Diseases, Death
