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Direct linkBurke, Meghan M.; Lee, Chung eun; Arnold, Catherine K.; Owen, Aleksa – Intellectual and Developmental Disabilities, 2017
Adult siblings of individuals with intellectual and developmental disabilities (IDD) report struggling to navigate the adult disability service delivery system and collaborate with professionals. To date, though, it is unclear how professionals encourage sibling involvement and, accordingly, the facilitators and challenges in working with…
Descriptors: Adults, Siblings, Intellectual Disability, Developmental Disabilities
Magaña, Sandra; Parish, Susan; Morales, Miguel A.; Li, Henan; Fujiura, Glenn – Intellectual and Developmental Disabilities, 2016
Racial and ethnic health disparities are a pervasive public health problem. Emerging research finds similar health disparities among people with intellectual and developmental disabilities (IDD) compared to nondisabled adults. However, few studies have examined racial and ethnic health disparities among adults with IDD. Using national data, we…
Descriptors: Intellectual Disability, Developmental Disabilities, Racial Differences, Ethnic Groups
Burke, Meghan; Arnold, Catherine; Owen, Aleksa – Intellectual and Developmental Disabilities, 2018
Although individuals with intellectual and developmental disabilities (IDD) are living longer lives, fewer than half of parents of individuals with IDD conduct future planning. The correlates and barriers to future planning must be identified to develop targeted interventions to facilitate future planning. In this study, 388 parents of individuals…
Descriptors: Intellectual Disability, Developmental Disabilities, Planning, Parent Participation
Havercamp, Susan M.; Ratliff-Schaub, Karen; Macho, Patricia Navas; Johnson, Cherelle N.; Bush, Kelsey L.; Souders, Heather T. – Intellectual and Developmental Disabilities, 2016
People with autism spectrum disorder (ASD) and other developmental disabilities have poorer health and face unique barriers to health care compared to people without disabilities. These health disparities can be partially attributed to physicians' limited knowledge about caring for patients with developmental disabilities. The purpose of this…
Descriptors: Autism, Pervasive Developmental Disorders, Developmental Disabilities, Medical Education
Beaudoin, Wilfred; Moore, Adam – Intellectual and Developmental Disabilities, 2018
In the past several years, there has been an important movement to reduce the utilization of restraint for individuals with developmental disabilities. Legislatures, local and national, are taking on the task of shaping the way that our culture supports people who, up until now, have been often treated in a punitive manner rather than truly…
Descriptors: Developmental Disabilities, At Risk Persons, Functional Behavioral Assessment, Change Strategies
Williamson, Heather J.; Perkins, Elizabeth A. – Intellectual and Developmental Disabilities, 2014
Individuals with intellectual and developmental disabilities (IDD) in the U.S. predominantly live with their family caregivers. As care delivery and support systems vary widely globally, consideration of caregiver outcomes specifically in the U.S. context is needed. A systematic literature review was conducted to identify U.S. family caregiver…
Descriptors: Developmental Disabilities, Mental Retardation, Literature Reviews, Caregivers
Rossetti, Zachary; Lehr, Donna; Pelerin, Dana; Huang, Shuoxi; Lederer, Leslie – Intellectual and Developmental Disabilities, 2016
Despite initiatives supporting young adults with intellectual and developmental disabilities (IDD) to engage in post-secondary education and integrated employment, those with more intensive support needs are not as easily involved in these post-school experiences. In an effort to learn from positive examples, we examined parent involvement in…
Descriptors: Young Adults, Intellectual Disability, Developmental Disabilities, Parent Participation
Keesler, John M. – Intellectual and Developmental Disabilities, 2018
Direct support professionals (DSPs) provide integral support to many individuals with intellectual and developmental disabilities (IDD). Yet, individuals' access to qualified DSPs is often compromised as organizations struggle to hire and retain DSPs. Despite a vast body of research exploring factors associated with turnover, adverse childhood…
Descriptors: Intellectual Disability, Developmental Disabilities, Early Experience, Allied Health Personnel
Gilson, Cathy B.; Bethun, Lauren K.; Carter, Erik W.; McMillan, Elise D. – Intellectual and Developmental Disabilities, 2017
The importance of supporting families with members who have intellectual and developmental disabilities (IDD) is well established in both policy and research. Yet little is known about how familiar parents are with existing resources (e.g., programs, supports, trainings), what information they would consider most helpful, and how they would prefer…
Descriptors: Developmental Disabilities, Socioeconomic Status, Familiarity, Intellectual Disability
Swenson, Sue – Intellectual and Developmental Disabilities, 2015
This speech was presented at a conference, the National Goals in Research, Policy, and Practice, held in Washington, DC, on August 6-7, 2015. The conference was a working meeting to summarize the current state of knowledge and identify a platform of national goals in research, practice, and policy in intellectual and developmental disabilities.…
Descriptors: Intellectual Disability, Developmental Disabilities, State of the Art Reviews, Research Methodology
Wehmeyer, Michael L.; Abery, Brian H. – Intellectual and Developmental Disabilities, 2013
Promoting self-determination and choice opportunities for people with intellectual and developmental disabilities has become best practice in the field. This article reviews the research and development activities conducted by the authors over the past several decades and provides a synthesis of the knowledge in the field pertaining to efforts to…
Descriptors: Self Determination, Mental Retardation, Developmental Disabilities, Best Practices
Erickson, Steven R.; Salgado, Teresa M.; Tian, Xi – Intellectual and Developmental Disabilities, 2016
People who have intellectual and developmental disabilities (IDD) often rely on caregivers to assist in the medication management process. The aim of this study was to learn from caregivers, who are either family or support staff, what major issues arise throughout the process of managing medication and how these might be addressed. Problems…
Descriptors: Drug Therapy, Health Insurance, Medical Evaluation, Records (Forms)
Aldersey, Heather M.; Turnbull, H. Rutherford, III; Turnbull, Ann P. – Intellectual and Developmental Disabilities, 2014
This article reports results of a 7-month qualitative study on intellectual and related developmental disabilities in Kinshasa, Democratic Republic of the Congo, particularly as they relate to the causes and meaning of intellectual and developmental disabilities (IDD). This study raises important questions related to the understanding of…
Descriptors: Foreign Countries, Qualitative Research, Mental Retardation, Developmental Disabilities
Turnbull, Rud; Stowe, Matthew J. – Intellectual and Developmental Disabilities, 2017
This article describes a 12-step model that can be used for policy analysis. The model encompasses policy development, implementation, and evaluation; takes into account structural foundations of policy; addresses both legal formalism and legal realism; demonstrates contextual sensitivity; and addresses application issues and different…
Descriptors: Intellectual Disability, Developmental Disabilities, Policy Analysis, Models
Smith, J. David; Polloway, Edward A. – Intellectual and Developmental Disabilities, 2014
Although positive regard for the needs of people with disabilities was apparently uncommon by many accounts prior to the 20th century, this may be a misconception of history. There were likely many people who responded to the needs of their family members and others in need of assistance because of their disablities, and their physical and…
Descriptors: Disabilities, History, Mental Retardation, Philosophy
