Drawing upon ongoing research exploring lived experiences of sensory overload, meltdown, and shutdown in autism as a framework, this article reflects on the challenges and benefits of employing participatory methods in doctoral research. In particular, the process of establishing and working with a Research Advisory Group to co-create a…

Action research methodologies are dynamic, as they often evolve with a group and are shaped by multiple contributions that can change over time. As researchers are embedded within this process, reflexivity is paramount to remain attuned to how they move with and shape the research. In search of a dynamic way of engaging with reflexivity in action…

When reflecting on my years as a doctoral student, I recall several questions that often came to mind throughout my journey: what is participatory health research? Is such an approach to research truly feasible in the pursuit of a doctoral degree? Is it worth it, or have I inadvertently made things more challenging for myself? My response to these…

This paper reflects on the dynamic of co-developing knowledge within a Community-Based Participatory Research (CBPR) project in the UK that set out to direct teenage and young adult Ambulatory Care. This is a service that offers cancer treatment that would have once required inpatient hospital stays. Working within a Community-of-Inquiry (CoI),…

Participatory research (PR) involves people with lived experiences of the research topic as co-creators of knowledge. I have the dual role of being both a doctoral researcher and the co-ordinator of a research group -- the Converge Evaluation and Research Team (CERT) -- which consists of researchers with lived experience of mental health…

This paper describes and reflects upon the first author's journey from teacher to researcher, working with deafblind children and young people, and the research teams' development of person-centred research methods. Historically deafblind people, particularly children and young people, have rarely been included in participation action research, in…

This paper/visual art/puppet show is about the more-than-human entities who help me include my whole self in my teaching and other research. It is about how generative it is to be our whole, sacred, profane, glorious selves. This art reminds us of the importance of dreaming beyond what we have been told is possible. It demonstrates how irreverent,…

This article addresses the question of how theatre interventions as elements of a participatory and action-oriented research design can contribute to justice-oriented Caring Community processes. Caring Communities are local initiatives that strengthen everyday solidarity through civic engagement and neighbourhood support, link informal and formal…

Conducting participatory action research (PAR) with people with and without intellectual disabilities presents challenges, primarily due to participants' varying verbal expression and reflective thinking abilities, leading to potential power imbalances and unfair outcomes. This study investigates using the arts to address these issues in a…

Social isolation and loneliness are reported as having significant impacts on health, especially for older people. Policy concern has led to the creation of interventions to try and tackle these issues, including the funding of community-based support groups. The National Lottery Ageing Better Fund, 2015-2022 supported voluntary and community…