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Hassan Mansour; Amy Gillions; Jude Brown; Anoushka Pattenden; Susan Hartley; Sarifa Patel; Stephanie James; Martin Styles; Will Mandy; Joshua Stott; Elizabeth O'Nions – Autism: The International Journal of Research and Practice, 2025
Autistic people are more likely to experience physical and mental health difficulties across the lifespan, leading to an increased risk of premature mortality likely due to health disparities. At present, little is known about the healthcare experiences of autistic older adults. Semi-structured interviews were conducted with 19 autistic adults…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Older Adults, Health Services
Freeman, Nerelie C.; Paradis, Pascale – Autism: The International Journal of Research and Practice, 2023
The process of getting an autism diagnosis can be a stressful and uncertain time for families. While the experiences of parents seeking an autism diagnosis for their child have been explored in previous research, the experiences of families with a daughter have been underrepresented. It is likely that their experience is markedly different given…
Descriptors: Parent Role, Autism Spectrum Disorders, Daughters, Clinical Diagnosis
Sarah J. E. Marsden; Rachael Eastham; Alexandra Kaley – Autism: The International Journal of Research and Practice, 2025
Autistic people experience a higher prevalence of self-harming behaviours than do the general population. Self-harm remains a stigmatised topic, and until recently, self-harming behaviours in autism were considered to be limited to self-injurious behaviours experienced by intellectually impaired autistic children and not to be experienced by…
Descriptors: Autism Spectrum Disorders, Adults, Self Destructive Behavior, Social Support Groups
Shyamani Hettiarachchi; Shamra Nizar; Gopi Kitnasamy; Dilani Gopi – Autism: The International Journal of Research and Practice, 2025
From a critical disability rights lens, everyone has a right to communicate using any means available, which includes augmentative and alternative communication. The uptake of augmentative and alternative communication beyond the therapy room may be influenced by awareness, perceptions and acceptance of augmentative and alternative communication…
Descriptors: Foreign Countries, Parent Attitudes, Augmentative and Alternative Communication, Developing Nations
Nicole David; Pascal Rahlff; Hannah König; Sophia Dückert; Petia Gewohn; Frank Erik; Kai Vogeley; Daniel Schöttle; Alexander Konnopka; Holger Schulz; Judith Peth – Autism: The International Journal of Research and Practice, 2025
Autistic adults frequently show increased physical or mental health conditions and impairments in social, occupational, and other life domains. Accordingly, they often report reduced health-related quality of life. Yet, numerous barriers prevent effective healthcare for autistic adults. To date, the impact of healthcare barriers on health-related…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Adults, Access to Health Care
Aspasia Stacey Rabba; Jodie Smith; Gabrielle Hall; Vanessa Alexander; Kate Batty; Poulomee Datta; Emma Goodall; Melanie Heyworth; Siobhan Lamb; Wenn Lawson; Rozanna Lilley; Katy Reid; Najeeba Syeda; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2025
Successful partnerships between families and schools can substantially improve children's success in and out of school. Yet parents of autistic children often report considerable challenges with their children's education. Almost no research, however, has examined autistic parents' own experiences. We, therefore, sought the views and experiences…
Descriptors: Autism Spectrum Disorders, Mothers, Parent Attitudes, Parent School Relationship
Jade Davies; Anna Remington; Carole Buckley; Laura Crane; Katelyn Smalley – Autism: The International Journal of Research and Practice, 2024
Autistic people in England face worse health outcomes than non-autistic people. Autism-specific annual health checks have been proposed as one solution to this issue. This study identified strategies to incentivise primary care providers to offer autism-specific annual health checks, using a behavioural science approach. In phase 1, we conducted…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Access to Health Care, Environmental Influences
Sarosha Pillay; Madeleine Duncan; Petrus J. de Vries – Autism: The International Journal of Research and Practice, 2024
Autism spectrum disorder is a growing public health concern in low-and middle-income countries that has prompted a World Health Organization resolution on "comprehensive and coordinated efforts for management of autism spectrum disorder." Despite being a signatory of the resolution, South Africa does not have any national policies to…
Descriptors: Autism Spectrum Disorders, Foreign Countries, Developing Nations, Government Employees
Maretha de Jonge; Mohamed Boutjdir; Tahar El-Korchi; Hafida Torres; Arun Karpur; Andy Shih; Abdeslem Elidrissi – Autism: The International Journal of Research and Practice, 2024
Understanding caregivers' needs is crucial for service planning and empowering caregivers around the world. Although research on autism from Arab countries is emerging, many countries are still unrepresented. Moreover, within-country disparities are understudied. This study investigated differences in needs, service use, and satisfaction between…
Descriptors: Rural Urban Differences, Satisfaction, Caregiver Attitudes, Autism Spectrum Disorders
How Do Primary Care Providers and Autistic Adults Want to Improve Their Primary Care? A Delphi-Study
Eva B Warreman; Wietske A Ester; Hilde M Geurts; Robert RJM Vermeiren; Laura A Nooteboom – Autism: The International Journal of Research and Practice, 2024
Autistic adults often experience health problems and a range of healthcare barriers. Therefore, the aim of this study was to evaluate barriers and explore how primary care providers and autistic adults want to improve their primary healthcare. Semi-structured interviews with three autistic adults, two parents of autistic children and six care…
Descriptors: Adults, Autism Spectrum Disorders, Primary Health Care, Allied Health Personnel
Priscilla Brandi Gomes Godoy; Lorna McWilliams; Leticia Rodrigues da Silveira; Mirian de Cesaro Revers Biasão; Fernanda Speggiorin Pereira Alarcão; Leonardo Seda; Renata Generoso Campoli; Holan Liang; Gauri Divan; Kathy Leadbitter; Jonathan Green; Elizabeth Shephard – Autism: The International Journal of Research and Practice, 2024
Effective support for autistic individuals is lacking in Brazil. Few centres offer services and those that do are limited in therapeutic options and geographical location. Paediatric Autism Communication Therapy is a low-intensity, evidence-based parent-mediated social-communication intervention that may be useful for this scenario. This…
Descriptors: Foreign Countries, Parent Role, Interpersonal Communication, Communication Skills
Bayparvah Kaur Gehdu; Katie L. H. Gray; Richard Cook – Autism: The International Journal of Research and Practice, 2024
In the present study, we sought to examine whether face recognition problems impact the social anxiety experienced by autistic people. Many autistic people -- perhaps between 15% and 30% -- exhibit severe face recognition problems that closely resemble developmental prosopagnosia. At present, however, little is known about the psychosocial…
Descriptors: Autism Spectrum Disorders, Anxiety, Recognition (Psychology), Predictor Variables
Diana Weiting Tan; Marion Rabuka; Tori Haar; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2024
In recent years, the number of autistic people entering university has increased in Australia and worldwide. While an encouraging trend, autistic students' completion rates remain much lower than non-autistic students in Australia. Perhaps unsurprisingly, numerous studies investigating autistic people's experiences at universities have identified…
Descriptors: Autism Spectrum Disorders, Student Experience, Foreign Countries, College Students
Lucy Beasant; Alba Realpe; Sarah Douglas; Lorcan Kenny; Dheeraj Rai; Nicola Mills – Autism: The International Journal of Research and Practice, 2024
The purpose of this study is to explore the views of autistic adults on randomised controlled trials, specifically on processes such as randomisation and blinding, to understand the barriers and facilitators for recruiting autistic people to randomised controlled trials involving medications. We conducted one-to-one interviews with 49 autistic…
Descriptors: Autism Spectrum Disorders, Adults, Attitudes, Randomized Controlled Trials
Amrit Chauhan; Kathy Leadbitter; Kara A. Gray-Burrows; Karen Vinall-Collier; Nicola Pickles; Sarah R. Baker; Zoe Marshman; Peter F. Day – Autism: The International Journal of Research and Practice, 2025
In England, a quarter of 5-year-olds have tooth decay. For families with autistic children, establishing optimal habits (toothbrushing twice a day with fluoride toothpaste, limiting sugar intake and regular dental visits) can be difficult. Oral health experiences from the perspective of autistic children remains unexplored. Interviewing autistic…
Descriptors: Children, Autism Spectrum Disorders, Dental Health, Hygiene