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Development and Implementation of a Longitudinal Clinical Database for Down Syndrome in a Large Pediatric Specialty Clinic: Methodology and Feasibility
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Nicole T. Baumer; Margaret A. Hojlo; Angela M. Lombardo; Anna L. Milliken; Katherine G. Pawlowski; Sabrina Sargado; Cara Soccorso; Emily J. Davidson; William J. Barbaresi – Journal of Intellectual Disabilities, 2024
Down syndrome (DS) is a complex condition associated with multiple medical, developmental, and behavioral concerns. A prospective, longitudinal clinical database was integrated into a specialty Down Syndrome Program, with the goals of better understanding the incidence, course, and impact of co-occurring medical, neurodevelopmental, and mental…
Descriptors: Down Syndrome, Patients, Program Improvement, Databases
Perspectives of Adults without Disabilities on Their Friendships with Individuals with Intellectual and Developmental Disabilities
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Josol, Cynde Katherine; Fisher, Marisa H.; Athamanah, Lindsay S. – Journal of Intellectual Disabilities, 2023
Friendships contribute to positive social outcomes such as the promotion of prosocial behaviors and social well-being and can lead to an overall healthy quality of life. Despite the importance of friendships, little is known about how individuals without disabilities develop and maintain friendships with individuals with intellectual and…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Friendship
A Preliminary Investigation of the Suitability of Aquatics for People with Severe and Profound Intellectual Disabilities
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Aherne, Cian; Coughlan, Barry – Journal of Intellectual Disabilities, 2017
Background: Aquatics is an under-researched but possibly appropriate form of activity for people with severe to profound intellectual disabilities (SPIDs). Aim: The current pilot study investigates the suitability of an aquatics programme for service users with SPIDs. Method: Four service users with SPID completed an 8-12-session aquatics…
Descriptors: Severe Intellectual Disability, Aquatic Sports, Physical Activities, Caregivers