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Maurice A. Feldman; Amanda Cappon; Kay Corbier; Vicky Caruana; Mechane Laronde; Kendra Thomson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study evaluated the Step-by-Step Parenting Program (SBSPP) to prepare expectant parents with intellectual disabilities to care for their newborns. Method: Two expectant parents with intellectual disabilities were seen once or twice weekly in their homes for about 2 h over 16 and 20 weeks (21 and 27 sessions), respectively. The key…
Descriptors: Parent Education, Parents with Disabilities, Intellectual Disability, Neonates
Katherine Flannigan; Devon C. Edwards; Lisa Murphy; Jacqueline Pei – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Individuals with fetal alcohol spectrum disorder (FASD) experience complex needs that often necessitate support from multiple systems. There is growing evidence that people with FASD may benefit from integrated service delivery (ISD), but little is known about ISD elements and processes for this population. Method: Using a multi-method…
Descriptors: Fetal Alcohol Syndrome, Delivery Systems, Rural Areas, Affordances
Madison M. Walsh; Kaylyn Van Deusen; Miranda E. Pinks; Benedetta Ceci; Susan Hepburn; Nathanial R. Riggs; Francesca Pulina; Chiara Marcolin; Sara Onnivello; Sara Colaianni; Bethany Gray; Lisa A. Daunhauer; Silvia Lanfranchi; Deborah J. Fidler – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Parent-mediated intervention (PMI) is a potentially scalable approach for tailored interventions in neurogenetic conditions like Down syndrome (DS). Because PMIs require ongoing parent engagement, they must be developed in alignment with the needs of intended users. The present study examined caregiver opinions and preferences to…
Descriptors: Parent Attitudes, Intervention, Young Children, Down Syndrome
Sara Colaianni; Madison M. Walsh; Sara Onnivello; Miranda E. Pinks; Chiara Marcolin; Kaylyn Van Deusen; Elisa Rossi; Nathaniel R. Riggs; Francesca Pulina; Lisa Daunhauer; Deborah J. Fidler; Silvia Lanfranchi – Journal of Applied Research in Intellectual Disabilities, 2025
Background: People with Down syndrome (DS) are predisposed to challenges with executive functions (EF), which are crucial for adaptive outcomes and academic success. Early interventions targeting EF are therefore critical. The present study analysed Italian data on the acceptability, enjoyability and household implementation of EXPO (EXecutive…
Descriptors: Foreign Countries, Down Syndrome, Parent Role, Intervention
Jackie Ryan; Heather M. Brown; Anne Borden; Christina Devlin; Adam Kedmy; Austin Lee; David B. Nicholas; Sandy Thompson-Hodgetts – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Autonomy is a crucial component of self-determination, yet it is limited for Autistic individuals, especially those with co-occurring intellectual disabilities. We explored how professionals supported Autistic people with intellectual disabilities' autonomy. Materials and Methods: This qualitative study used a community-based…
Descriptors: Personal Autonomy, Adults, Self Determination, Autism Spectrum Disorders

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