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Meghana Wadnerkar Kamble; Jen Dawe; Karen Bunning – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There is limited evidence exploring sibling's perspective in Prader-Willi syndrome research. Objectives: To investigate the experiences and support needs of the siblings of individuals with Prader-Willi syndrome. Methods: This two-stage qualitative study involved siblings aged 11 years onwards (n = 11) and parents (n = 8). Stage 1…
Descriptors: Genetic Disorders, Intellectual Disability, Siblings, Parents