Unpaid (informal) family caregivers provide vitally important supports to people with intellectual and developmental disabilities (IDD), but receive little support or training. This study's aim was to examine how states across the nation supported informal family caregivers in their Medicaid Home- and Community-Based Services (HCBS) programs for…

People with intellectual and developmental disabilities (IDD) are overrepresented in the criminal legal system. Further, many people with IDD move between large state-run institutions and the criminal legal system. In 2019, for example, 29% of people moving into large state-run institutions came from jails, prisons, and other correctional…

This study's aim was to examine the impact of pandemic emergency Home- and Community-Based Services (HCBS) payments on the continuity and security of people with intellectual and developmental disabilities (IDD). Using a multilevel logistic regression, we analyzed secondary Personal Outcome Measures interviews from 738 people with IDD (March 2020…

This article describes a pilot project focused on creating opportunities for self-determination to enhance the community participation outcomes of adults with intellectual and developmental disabilities using the Self-Determined Learning Model of Instruction (SDLMI). The pilot project grew out of a partnership between researchers at a university…

In 2020, AUCD and the Think College National Coordinating Center (NCC) conducted a national survey that examined how individual DD Councils were supporting postsecondary education for students with IDD at the state level. As this brief explains, DD Councils in many states deliver diverse forms of support, including direct funding for programs,…

We provide the first descriptive summary of selected programs developed to help expand the scope of coverage, mitigate family financial hardship, and provide health and support services that children with intellectual and developmental disabilities need to maximize their functional status and quality of life. State financing initiatives were…

This study examined need, predisposing, market, and regional factors that predicted the likelihood of individuals with developmental disabilities living in state developmental centers (DCs) compared with living at home, in community care, or in intermediate care (ICFs) and other facilities. Secondary data analysis using logistic regression models…

The final part of a three part study of developmentally disabled persons in Washington State, this document focuses on clients of the Division of Developmental Disabilities (DDD), ages 19 through 26, who appeared to be eligible for DDD services but were not enrolled with the DDD (group C). Telephone interviews were conducted with parents of 55…

Summarized is a discussion paper on existing elements of legal advocacy systems which could be considered as alternative models for adaptation by the respective states now seeking to plan and implement the advocacy mandate under Section 113 of Public Law 88-164 as amended in 1975 by Public Law 94-103, the Developmental Disabilities Act. Chapters…

Examined in the discussion paper are advocacy issues raised by Section 113 of The Developmentally Disabled Assistance and Bill of Rights Act (Public Law 94-103). Considered in Part I are the benefits of, and need for advocacy, and raised are definitional aspects of that term. Part II summarizes the relevant legislative history of Section 113 of…

The study examined the relationship between direct clinical services provided to persons who are mentally retarded/developmentally disabled in 338 group homes and program and occupant characteristics. Findings suggest that group homes differ significantly in on-site service provision. (Author/CL)

Presented in the first year report of a joint project by the Oregon Developmental Disabilities Council and the Research and Training Center in Mental Retardation at the University of Oregon are planning strategies to assist state advisory councils in serving the developmentally disabled. Described in part one are project activities and reproduced…

Summarizes information presented in the American Association on Mental Retardation's 1998 publication, "State of the States in Developmental Disabilities" (Braddock, Hemp, Parish, and Westrich), which reports data on the implementation of managed care for persons with developmental disabilities. A table summarizes information about…

The second in a series of three reports, this document presents findings of clients of Washington's Division of Developmental Disabilities (DDD), ages 22-29, who were living with their families at age 18 but now live elsewhere (group B). Findings are based on telephone interviews with families of 224 DDD clients and analysis of DDD records. The…

Reported is the development of the Connecticut state plan to assess the needs of the developmentally disabled and establish service priorities. An overview of the planning system includes information on planning processes and the model components including needs assessment, priority setting, program development and selection, program approval, and…