Background: Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood. Method: Caregivers (n…

Estimates show that one in six children aged three through 17 in the United States have one or more developmental disabilities. Many early childhood education programs aim to improve early identification of children with developmental disabilities and increase family engagement, specifically Head Start and Early Head Start programs. The present…

Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…

This study assessed needs and outcomes for people with developmental disability (DD) to understand the socioeconomic status of this group prior to implementation of the Accessible Canada Act in June 2019. The 2017 Canadian Survey on Disability (CSD) was used to analyze data for a sample of individuals with self-reported disability. Data related to…

Emerging research tests the impact of United States Medicaid home and community-based (HCBS) waiver policy on outcomes for people with intellectual and developmental disabilities; however, this body of work has yet to be synthesized. We conducted a scoping review to establish what is known about the impact of Medicaid HCBS policy on the lives of…

Early intervention services are an important federally funded program for families with children under three years of age who may be diagnosed with or are at risk of developmental delay or disability. The program's impacts can be profound: Early intervention helps strengthen cognitive, motor, and language skills; reduces the likelihood of…

This project sought to identify Medicaid members with intellectual and developmental disabilities (IDD) in five states (Delaware, Iowa, Massachusetts, New York, and South Carolina) to develop a cohort for subsequent analyses of medical conditions and service utilization. We estimated that over 300,000 Medicaid members in these states had IDD. All…

Narrative skills that are important for preschoolers include retelling stories, telling personal stories, and answering questions about stories. Narrative abilities form the foundation of reading comprehension. The purpose of this study was to investigate the effect of an individually delivered language intervention on the narrative skills of…

Iowa established the Statewide Voluntary Preschool Program (SVPP) in 2007. It has grown to be the largest--although not the only--public preschool program in the state. It is available without regard to family income. Iowa also supports preschool for low-income children through its Shared Visions program and Early Childhood Iowa, the…

The importance of the federal role in the preparation of doctoral-level personnel is well acknowledged. It helps to produce future leaders in critical areas and is a key component of the nation's economic security, its prestige around the world, and its leading position in research and innovation across all areas. Through a number of agencies, the…

The report focuses on the National Association of State Mental Retardation Program Directors' project to produce an indepth analysis of income maintenance for the developmentally disabled. The following issues were considered: the disability determination process; eligibility for rehabilitation services; incentives and disincentives to employment;…

The report analyzes the impact of the change from a categorical definition of developmental disabilities to one which emphasizes functional limitations and the accompanying need for services as mandated by the 1978 Developmental Disabilities Assistance and Bill of Rights Act (P.L. 95-602, Section 502). Part I is an introduction with sections on…

The monograph summarizes national, regional, and state expenditure data for mental retardation (MR)/developmental disabilities (DD) services from fiscal year 1977-84. Data were compiled through responses of MR/DD state agency officials to data extracted from state excecutive budget documents. The project was designed to (1) develop a methodology…

The report summarizes results from a mental retardation/developmental disabilities (MR/DD) expenditure analysis study. Three parts comprised the study: (1) the state government expenditure analysis which covered fiscal years (FY) 1977 through 1984, and dealt primarily with state general fund expenditures of the principal MR/DD state agency, the…

Purpose: While state policy and market factors are known to have contributed to the increased supply of residential care, little is known about efforts to accommodate demand from lower-income consumers. This study describes participation and expenditure trends for residential care services funded by Medicaid waivers and examines variation across…