Fragile X syndrome (FXS), as a monogenic cause of intellectual disability and autism spectrum disorder, has been one of the first neurodevelopmental disorders in which molecular and neuronal mechanisms of disease have been identified, leading to the concept of targeting the underlying disease to reverse symptoms. Translating findings in basic…

Approximately 1 in 6 children in the US has a developmental delay, disorder, or disability (DD). Early identification of DDs can help families access services that empower children and families, and it can improve child outcomes. The "Learn the Signs. Act Early." (LTSAE) Program at the Centers for Disease Control and Prevention (CDC)…

"Promoting choice" is a defining value guiding Positive Behavior Support (PBS) models for serving individuals with intellectual and/or developmental disabilities (IDD). The ability to make independent choices is of paramount importance to self-advocacy and self-determination. Promoting choice is also an essential commitment of…

Time delay is one of the most established practices for teaching both functional and academic skills to students with extensive support needs (ESN). Students with ESN have intellectual or developmental disabilities and, in some cases, other support needs (e.g., physical disabilities, sensory impairments) and require comprehensive instructional and…

Adaptive care plans (ACPs) are an innovative method to providing care for children and adolescents with developmental disabilities who have challenging behaviors during healthcare encounters. ACPs take a family-centered approach to ensure that children with developmental disabilities are able to receive safe and appropriate healthcare by…

Background: Early intervention (EI) can improve a range of outcomes for families of children with developmental disabilities. However, research indicates the level of access does not always match the level of need. To address disparities, it is essential to identify factors influencing access. Method: We propose a framework where access to EI is…

Purpose: Interventions that target the full breadth of communication skills for individuals who use augmentative and alternative communication (AAC) are needed in the literature. Narrative interventions for AAC would target the important communication skill of storytelling and may have broader academic and social effects. The authors review the…

Education to address sexual education that prevents unplanned pregnancy, sexually transmitted infections, and misinformation is necessary for promoting health and safety among school-aged children. Teachers provide sexual education in educational settings in several states across the country; however, teachers are not prepared to educate students…

The COVID-19 epidemic caused disruption and dislocation in the lives of people with disabilities, their families, and providers. What we have learned during this period regarding the strengths and weaknesses of the service system for people with disabilities should provide a roadmap for building a more robust and agile system going forward. Based…

This article describes a comprehensive framework for incorporating moderator and mediator variables in program logic models and theory development as a useful way to better implement and evaluate policies and practices in the field of intellectual and developmental disabilities related (IDD). Firstly, an overview of [program] logic models in the…

The BCBA Task List (5th and 6th Edition) requires behavior analysts are familiar with multiple assessment methods, including tools to assess the function of problem behaviors and assess skill strengths and deficits. Although several studies exist on the assessment of functions using indirect functional assessments, descriptive functional…

Over the past several decades, we have developed quality behavioral assessments and interventions for challenging behaviors among individuals with a variety of severe developmental and cognitive disorders. These assessments and interventions have been used to educate family members on how to understand and intervene with these behaviors at home…

Fetal alcohol spectrum disorder (FASD) is a diagnostic term used to describe an array of structural, neurocognitive, and behavioral effects that result from prenatal alcohol exposure. While ongoing efforts have been made to increase the capacity of communities to provide early FASD diagnosis, there continues to be on-going challenges, particularly…

Peer-mediated interventions are a powerful and practical way of promoting the social relationships, learning, and inclusion of students with disabilities. In this article, we describe one state's efforts to scale up a research-based, peer-mediated program called Peer to Peer throughout Michigan. Among the more than 700 schools that now offer this…

Research teams must collaborate with people with intellectual and developmental disabilities to identify effective and inclusive responses to the COVID-19 pandemic and other public health emergencies. Collaborating remotely requires telecommunication and other technologies. We designed and evaluated a digital "Toolkit for Remote Inclusive…