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Direct linkMaes, Bea; Nijs, Sara; Vandesande, Sien; Van keer, Ines; Arthur-Kelly, Michael; Dind, Juliane; Goldbart, Juliet; Petitpierre, Geneviève; Van der Putten, Annette – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. Methods: The challenges are…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Research Methodology, Barriers
Tuffrey-Wijne, Irene; Rose, Tracey; Grant, Robert; Wijne, Astrid – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Many people with intellectual disabilities are affected by death, yet conversations about death are often avoided by staff working with them. This study aimed to assess staff training needs and to develop, trial and evaluate a training course on communicating about death and dying. Method:(i) Semi-structured interviews with 20 staff in…
Descriptors: Intellectual Disability, Death, Caregiver Role, Caregiver Training
Tracy, Jane; McDonald, Rachael – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Despite awareness of the health inequalities experienced by people with intellectual disability, their health status remains poor. Inequalities in health outcomes are manifest in higher morbidity and rates of premature death. Contributing factors include the barriers encountered in accessing and receiving high-quality health care.…
Descriptors: Disabilities, Partnerships in Education, Health Services, Mental Retardation
Journal of Applied Research in Intellectual Disabilities, 2008
Background: On August 5th, 2006, the third meeting of the International Association for the Scientific Study of Intellectual Disabilities (IASSID) Special Interest Research Group (SIRG) on Parents and Parenting with Intellectual Disabilities was convened in Maastricht, The Netherlands, coinciding with the 2nd International Congress of…
Descriptors: Interest Research, Mental Retardation, Child Rearing, Position Papers
Chapireau, Francois – Journal of Applied Research in Intellectual Disabilities, 2005
Background: The World Health Organization has adopted two classifications relating to disability, one was published in 1980 and the more recent one in 2001. Although the international classification of functioning, disability and health (ICF) was drafted as a revision of the international classification of impairments, disabilities and handicaps…
Descriptors: Classification, Disabilities, Health Needs, International Cooperation
