Unpaid (informal) family caregivers provide vitally important supports to people with intellectual and developmental disabilities (IDD), but receive little support or training. This study's aim was to examine how states across the nation supported informal family caregivers in their Medicaid Home- and Community-Based Services (HCBS) programs for…

Recognizing the crisis the COVID-19 pandemic represents to the Home- and Community-Based Services (HCBS) service system and the health, safety, and quality of life of people with intellectual and developmental disabilities (IDD), states temporarily amended their HCBS programs to strengthen service delivery. States are able to temporarily amend…

This study's aim was to examine the impact of pandemic emergency Home- and Community-Based Services (HCBS) payments on the continuity and security of people with intellectual and developmental disabilities (IDD). Using a multilevel logistic regression, we analyzed secondary Personal Outcome Measures interviews from 738 people with IDD (March 2020…

Peer-mediated interventions are a powerful and practical way of promoting the social relationships, learning, and inclusion of students with disabilities. In this article, we describe one state's efforts to scale up a research-based, peer-mediated program called Peer to Peer throughout Michigan. Among the more than 700 schools that now offer this…

This article describes a pilot project focused on creating opportunities for self-determination to enhance the community participation outcomes of adults with intellectual and developmental disabilities using the Self-Determined Learning Model of Instruction (SDLMI). The pilot project grew out of a partnership between researchers at a university…

We provide the first descriptive summary of selected programs developed to help expand the scope of coverage, mitigate family financial hardship, and provide health and support services that children with intellectual and developmental disabilities need to maximize their functional status and quality of life. State financing initiatives were…

Newborn screening is a test done on every child born in the US shortly after birth to detect diseases where, if not diagnosed and treated in the newborn period, the child will suffer significant trauma, disability or die. A few drops of blood from each baby's heel is put on a card and sent to the state's public health lab for testing. Most states…

This study examined need, predisposing, market, and regional factors that predicted the likelihood of individuals with developmental disabilities living in state developmental centers (DCs) compared with living at home, in community care, or in intermediate care (ICFs) and other facilities. Secondary data analysis using logistic regression models…

A cost-benefit analysis is presented for Illinois's statewide supported employment initiative for individuals with developmental disabilities. The analysis concludes that society realized a $0.75 return for every $1.00 invested in supported employment, while supported employees realized a 37 percent increase in their earnings. (Author/JDD)

Text, a table, and a graph show average per resident daily expenditures in large state-operated mental retardation/developmental disabilities (MR/DD) facilities in Fiscal Year 93 by state, and average annual per resident expenditures in large state-operated MR/DD facilities since 1950 both in absolute dollar amounts and in 1964 dollars. (DB)

The study examined the relationship between direct clinical services provided to persons who are mentally retarded/developmentally disabled in 338 group homes and program and occupant characteristics. Findings suggest that group homes differ significantly in on-site service provision. (Author/CL)

Many resources (including grants and training) that are available from state Developmental Disabilities Councils are of interest to parents of disabled persons about to leave the public education system. The Councils for each state and the District of Columbia are listed. (CB)

Explains the concept of corporate legal guardianship, which allows a single legal entity to serve as guardian to thousands of clients at one time. Discusses the concept's broad applicability to classes of people other than the developmentally disabled and shows its potential as a unique interdisciplinary approach. (Author/ABB)

Summarizes information presented in the American Association on Mental Retardation's 1998 publication, "State of the States in Developmental Disabilities" (Braddock, Hemp, Parish, and Westrich), which reports data on the implementation of managed care for persons with developmental disabilities. A table summarizes information about…

The article advocates extension of "permanency planning" in out-of-home placements to include children and youth with developmental disabilities. Though some states currently operate programs according to the principles of permanency planning, significant changes in existing federal policy are recommended to require permanency planning…