Families of youth with disabilities often access services to promote youth's transitions to adulthood. Such services can be oriented toward the youth or family. Using descriptive statistics and regression modeling of survey and administrative data, we explored patterns of service use and the association between outcomes for 9,013 U.S. youth with…

Families are central to promoting communication in young children with disabilities with complex communication needs. Providing coaching on naturalistic language interventions (NLI) gives parents tools for independently intervening on communication across activities in the home. Both parents and professionals have limited resources, which requires…

Service coordinators (SCs) in Part C early intervention (EI) programs fulfill critical supportive roles assisting families in accessing and successfully navigating services needed for their infants/toddlers identified with delays or disabilities. However, evidence of effective training for SCs is limited. One state scaled up training in the…

Background: This study examined how siblings and siblings-in-law of persons with intellectual disabilities experience the establishment of and processes within the couple relationship. Method: In-depth semi-structured interviews with 12 siblings and 12 siblings-in-law of persons with intellectual disabilities were analysed using thematic analysis.…

Little attention has been given to the experiences of refugee families parenting a child living with disabilities as they resettle in a new country. Using narrative inquiry, we inquired into the experiences of two Syrian refugee families' identity-making and agency in their efforts to secure services and programs for their children in Canada. We…

The objective of this study was to verify the effects on 4- to 18-month-old babies' NPMD after the family-centered Kids Intervention Therapy -- Aquatic Environment (KITE) programme. This quasi-experimental study involved 61 families. The NPMD was assessed with Alberta Infant Motor Scale (AIMS), Denver II Developmental Screening Test, context…

Promoting the Readiness of Minors in Supplemental Security Income (PROMISE), a study of 13,444 randomly assigned youth and their families, includes six model demonstration projects and a technical assistance center funded through the U.S. Department of Education and a national evaluation of the model demonstration projects funded through the…

This exploratory study used the Future of Families and Child Wellbeing Study (FFCWS) to compare the financial well-being of families of adolescents with and without autism. Recognizing the gap in autism research, which predominantly measures financial well-being through household income, this study employed a multidimensional approach, including…

More than 50 years of research has demonstrated the profound effect that aphasia has on people with the condition and their family members. In the International Classifcation of Functioning, Disability and Health, the World Health Organization described the impact of an individual's health condition on a signifcant other as "third-party…

Families of children with disabilities may experience mental health problems, feelings of emotional isolation or parental role incompetence. Early intervention (ECI) acts through Family-Centred Practices (FCP) to support child development and, at the same time, strengthen family capacities and inclusion. The aim of the study is to analyse the…

Fathers in families with childhood disability have an important role in fostering coping and resilience in children. Insight into men's thoughts about fathering is necessary to provide family-centered interventions. The purpose of this study was to explore men's experience of being a father in families with childhood disability. Qualitative…

Parents of children with disabilities often experience a higher level of stress than parents of children without disabilities, regardless of categories of disabilities. Understanding parental stressors can lead to appropriate interventions and supports for these parents and their children with disabilities. This article discusses issues of…

Both early intervention (EI) programs for infants and toddlers with disabilities and newborn screening (NBS) programs to identify specific disorders shortly after birth rest on the assumption that the best way to prevent or lessen the impact of a disorder is to provide treatment as early as possible. Despite this shared vision, the two programs…

Raising a young child with challenging behavior can have a significant impact on families' well-being and family functioning. Despite advancements in the field, there is a paucity of research focused on effective ways to address their unique experiences. This qualitative meta-synthesis aims to identify the needs of families with young children who…

Globally, families who care for a child or adolescent with disabilities have been found to experience high levels of maternal ill health, stress, depression and family breakdown. In extreme cases, children and adolescents may have to move away from their family to a permanent residential placement. A potentially more appropriate and cost-effective…