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Direct linkTschamper, Merete Kristin; Systad, Silje – Journal of Intellectual Disabilities, 2022
Persons with rare, epilepsy-related disorders often have intellectual disability and need long-term care. Informal and formal caregivers need information in order to care for the persons in a safe way. Aims: The aims of this review were: (1) to obtain an overview of caregiver-reported information needs; and (2) to investigate if there are…
Descriptors: Intellectual Disability, Epilepsy, Caregivers, Access to Information
