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Burton, Holly; Gordon, Kim – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Government restrictions enforced globally in response to COVID-19 necessitated changes to the delivery of mental health services, with many psychology professionals (PPs) forced to transfer their face-to-face practice to virtual means (telephone/video therapy) overnight. This review explores what is known about the experiences of PPs…
Descriptors: Intellectual Disability, COVID-19, Pandemics, Mental Health
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Alison Devitt; Melissa Nott; Stephanie Nelson; Julia Sgarlata; Michelle Gray; Srilaxmi Balachandran; Asma Taskin – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The COVID-19 pandemic precipitated a rapid roll-out of virtual health care services to people with intellectual disabilities. Limited evidence is available for clinicians to guide virtual care delivery. Method: Twenty-three studies were identified through systematic searching of 16 databases. Extracted data were mapped to the NSW…
Descriptors: COVID-19, Pandemics, Access to Health Care, Program Effectiveness
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Magda M. Apanasionok; Andreas Paris; Joanna Griffin; Richard P. Hastings; Ellie Finch; Debbie Austin; Samantha Flynn – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This review explored (1) what digital psychological wellbeing interventions for family carers of people with intellectual and developmental disabilities were reported in the literature, (2) evidence about their effectiveness, (3) factors affecting their implementation and (4) experiences of family carers who attend them. Methods: Seven…
Descriptors: Child Caregivers, Intellectual Disability, Developmental Disabilities, Intervention
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Adam Pitt; Suzanne Hodge – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Breast cancer is as frequent in women with intellectual disabilities as the general population, but the mammography uptake rate for women with intellectual disabilities is almost a third lower. This meta-synthesis aimed to explore physical and psychosocial barriers to mammography access for women with intellectual disabilities from the…
Descriptors: Cancer, Females, Access to Health Care, Intellectual Disability
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Taylor, Joshua; Avellone, Lauren; Brooke, Valerie; Wehman, Paul; Inge, Katherine; Schall, Carol; Iwanaga, Kanako – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Although competitive integrated employment (CIE) has been established as a goal of employment research, policy, and practice for individuals with intellectual and developmental disabilities, the secondary benefits of CIE are rarely discussed. Aims: The purpose of this systematic review was to analyze and synthesise research related to…
Descriptors: Intellectual Disability, Developmental Disabilities, Employment Level, Mental Health
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Alison Devitt; Melissa Nott; Rachel Rossiter – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The global rise in chronic health conditions highlights the importance of self-management in empowering people to actively participate in their healthcare. People with intellectual disabilities are disproportionately affected by these conditions and face barriers in accessing self-management interventions. Method: This scoping review…
Descriptors: Self Management, Health Behavior, Intellectual Disability, Barriers
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van den Bemd, Milou; Cuypers, Maarten; Bischoff, Erik W. M. A.; Heutmekers, Marloes; Schalk, Bianca; Leusink, Geraline L. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Primary care providers require accurate evidence on chronic disease prevalence in people with intellectual disabilities in order to apply this information into practice. This study aimed to map the broadness of literature on chronic disease prevalence in people with and without intellectual disabilities, and to explore main…
Descriptors: Chronic Illness, Intellectual Disability, Incidence, Research Methodology
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McLean, Kiley J.; Hoekstra, Allison M.; Bishop, Lauren – Journal of Applied Research in Intellectual Disabilities, 2021
Emerging research tests the impact of United States Medicaid home and community-based (HCBS) waiver policy on outcomes for people with intellectual and developmental disabilities; however, this body of work has yet to be synthesized. We conducted a scoping review to establish what is known about the impact of Medicaid HCBS policy on the lives of…
Descriptors: Federal Programs, Health Services, Community Services, Intellectual Disability
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Susan Buell; Gabrina Pounds; Peter Langdon; Karen Bunning – Journal of Applied Research in Intellectual Disabilities, 2024
Introduction: Easy Read health documents prepared for people with intellectual disabilities are often generated from Standard Texts. Language in Easy Read versions is typically assumed to be simpler. However, simplification of language may have unintended consequences. This study aimed to explore the differences in language used between Easy Read…
Descriptors: Foreign Countries, Reading Material Selection, Difficulty Level, Readability
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Goodall, Maeve; Irving, Kate; Nevin, Mary – Journal of Applied Research in Intellectual Disabilities, 2023
Background: People with profound intellectual disabilities are a population with complex comorbidities. Total pain recognises the interconnectedness of aspects of pain; social, psychological, physical, emotional, spiritual. Pain is under-recognised due to communication challenges and carers perceptions. This review's purpose is to synthesise…
Descriptors: Severe Intellectual Disability, Pain, Perception, Knowledge Level
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Kady F. Sternberg; Joanna G. Cloutier; Kaitlyn Ahlers; Christina Moore; Kathleen A. Koth; Takahiro Soda; Narpinder Kaur Malhi; Shikha Verma; Lisa C. Yeh; Jennifer L. McLaren – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Little research has been conducted solely exploring gender diversity in people with intellectual disabilities. This review explores the literature, discusses the prevalence, and identifies clinical best practices for people at the intersection of gender diversity and intellectual disability. Method: A scoping review was conducted…
Descriptors: Intellectual Disability, Incidence, LGBTQ People, Diversity
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Clara González-Sanguino; Alba Ayuso-Lanchares; Sara Castrillo-San Mamés; Jairo Rodríguez-Medina – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Mental health (MH) problems are more common in people with intellectual disabilities (ID), yet under-diagnosis persists, which may be partly due to a lack of appropriate assessment tools. This study presents a systematic review of instruments used to assess MH problems in Spanish-speaking adults with ID. Method: Following PRISMA…
Descriptors: Mental Health, Adults, Intellectual Disability, Spanish Speaking
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Hana Anderson; Amy C. Studer – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Individuals with intellectual disabilities experience barriers to quality healthcare. To reduce this disparity, equipping medical trainees with the knowledge and skills required for treating this patient population is critical. Our aim is to describe the breadth of instructional interventions and identify gaps in intellectual…
Descriptors: Literature Reviews, Medical Education, Patients, Physician Patient Relationship
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Ong, Natalie; Long, Janet C.; Weise, Janelle; Walton, Merrilyn – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Children with intellectual disability are vulnerable to adverse events in hospital due to limited staff skills and system safeguards. Method: A systematic review of the literature explored healthcare staff (HCS) experiences in providing care for children and young persons with intellectual disability in hospital using thematic…
Descriptors: Children, Intellectual Disability, Hospitals, Safety
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Maguire, Stephanie; Davison, Jenny; McLaughlin, Marian; Simms, Victoria; Bunting, Brendan – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Studies that have systematically reviewed the psychometric properties of health-related quality of life (HRQoL) and subjective wellbeing instruments for adolescents with intellectual disabilities narrowly focus on disease or health-specific conditions. This review aimed to critically appraise the psychometric properties of self-report…
Descriptors: Psychometrics, Measurement Techniques, Quality of Life, Well Being
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