ERIC Number: ED660245
Record Type: Non-Journal
Publication Date: 2022
Pages: 174
Abstractor: As Provided
ISBN: 979-8-3836-9334-6
ISSN: N/A
EISSN: N/A
Available Date: N/A
Somali Parents' Experiences with Autism and the Special Education System
Deeqaifrah A. Hussein
ProQuest LLC, Ed.D. Dissertation, University of St. Thomas (Minnesota)
This phenomenological research project explored the experiences of Somali parents of children diagnosed with autism spectrum disorder and how these parents navigated the special education system. Autism affects Somali immigrants disproportionately (Minnesota Department of Health, 2009). Recent research indicates that children of Somali descent have higher occurrences of autism diagnoses compared to the general population (Barnevik-Olsson, Gillberg, & Fernell, 2008, Bennet, 2012, Hewitt et al., 2016, Hall-Lande et al., 2018, Koegel et al., 2014, Munroe et al., 2016). Findings of this research indicated the following themes: social stigma, lack of awareness about autism, late diagnosis, lack of trust, grief and loss, shock of disability label, and lack of knowledge about special education. Additionally, findings also indicated differences of cultural perceptions of disability and child development, as well as access to early intervention services. Recommendations for future research include studies of disabilities and mental health through a cultural lens. [The dissertation citations contained here are published with the permission of ProQuest LLC. Further reproduction is prohibited without permission. Copies of dissertations may be obtained by Telephone (800) 1-800-521-0600. Web page: http://www.proquest.com.bibliotheek.ehb.be/en-US/products/dissertations/individuals.shtml.]
Descriptors: Foreign Countries, Parents, Autism Spectrum Disorders, Students with Disabilities, Special Education, Immigrants, Disproportionate Representation, Social Bias, Knowledge Level, Clinical Diagnosis, Trust (Psychology), Grief, Cultural Differences, Early Intervention
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Publication Type: Dissertations/Theses - Doctoral Dissertations
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Somalia; United States
Grant or Contract Numbers: N/A
Author Affiliations: N/A