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Direct linkTalman, Lena; Wilder, Jenny; Stier, Jonas; Gustafsson, Christine – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Participation is a central aspect of quality of life, and it is indicative of high-quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities. Aim: To describe staff members' perceptions of what participation means for adults…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Adults, Participation
Wilder, Jenny; Granlund, Mats – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Children with profound intellectual and multiple disabilities (PIMD) demand intense family accommodations from birth and onwards. This study used an exploratory and qualitative study design to investigate stability and change in sustainability of daily routines and social networks of Swedish families of children with PIMD. Materials…
Descriptors: Children, Severe Mental Retardation, Severe Disabilities, Multiple Disabilities
Axelsson, Anna Karin – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Children with profound intellectual and multiple disabilities need support to function in an optimal way. However, there is a limited knowledge about the role of external personal assistants working in the children's home. Materials and Methods: A mixed method study was performed including qualitative data from interviews with 11…
Descriptors: Severe Mental Retardation, Severe Disabilities, Multiple Disabilities, Mixed Methods Research
