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Following Children with Severe or Profound Intellectual and Multiple Disabilities and Their Mothers through a Communication Intervention: Single-Case Mixed-Methods Findings
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Flink, Anna Rensfeldt; Broberg, Malin; Strid, Karin; Thunberg, Gunilla; Johnels, Jakob Åsberg – International Journal of Developmental Disabilities, 2023
There is limited research targeting communication interventions for children with severe/profound intellectual and multiple disabilities. This study addressed outcomes from a communication course for parents of children with severe/profound intellectual and multiple disabilities and follows up on a previous publication by Rensfeldt Flink et al.…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Interpersonal Communication, Parent Child Relationship
Relatives' Experiences of Quality of Healthcare Services for Adults with Profound Intellectual and Multiple Disabilities in Sweden
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Marie Matérne; Marie Holmefur – Journal of Intellectual & Developmental Disability, 2024
Introduction: There is little research regarding quality of health care for people with profound intellectual and multiple disabilities (PIMD), who often are represented by their relatives, because of their limited communication. The aim of this study was to explore experiences and perspectives of relatives regarding healthcare services for adults…
Descriptors: Access to Health Care, Adults, Severe Intellectual Disability, Multiple Disabilities
Examining Perceptions of a Communication Course for Parents of Children with Profound Intellectual and Multiple Disabilities
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Rensfeldt Flink, Anna; Åsberg Johnels, Jakob; Broberg, Malin; Thunberg, Gunilla – International Journal of Developmental Disabilities, 2022
The overall aim was to examine participants' perceptions of a communication course as held for parents of children with profound intellectual and multiple disabilities. The course curriculum included responsive strategies and augmentative and alternative communication. The research questions addressed the favourability, changes in parents' or…
Descriptors: Parent Education, Parent Attitudes, Severe Intellectual Disability, Multiple Disabilities
Participation in Daily Life for Adults with Profound Intellectual (and Multiple) Disabilities: How High Do They Climb on Shier's Ladder of Participation?
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Talman, Lena; Stier, Jonas; Wilder, Jenny; Gustafsson, Christine – Journal of Intellectual Disabilities, 2021
Participation is the goal of Swedish disability policy, but it is difficult to achieve for adults with profound intellectual (and multiple) disabilities (PI(M)D). Since these adults are dependent on others in every aspect of their lives, others control their ability to participate in everyday life decisions. This study used observations, analyzed…
Descriptors: Daily Living Skills, Participation, Models, Civil Rights