The purpose of this study is to lay a foundation for illustrating the importance of longitudinal data collection by sharing the results of the Independent Monitoring for Quality (IM4Q) program in Pennsylvania designed to collect data over time on the quality of services for adults with intellectual and developmental disabilities. In this article,…

Background: Long-term care planning (LTCP) is critical for individuals with intellectual/developmental disabilities. Objectives of this study were to investigate progression through LTCP, and associations between social support and: (1) LTCP and (2) burden among family caregivers. Methods: A cross-sectional survey was distributed to caregivers of…

Background: Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood. Method: Caregivers (n…

Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…

Adolescents with intellectual and developmental disabilities (IDD) tend to receive inadequate comprehensive sex education (CSE). This problem could be addressed by providing sex education taught by general education health teachers to students with IDD in high school, a cost-effective yet underutilized and under researched service model. This…

People with intellectual and developmental disabilities (IDD) continue to experience high rates of unemployment. Previous research suggests that including an employment goal in an individual's service plan can be a mechanism toward attaining employment, especially in a community setting. This study contributes to the understanding of the role of…

Purpose: Many aided augmentative and alternative communication (AAC) systems require the use of an external display that is represented via a visual modality. It is critical to evaluate and understand visual-perceptual processing in individuals with disabilities who could benefit from AAC. One way to evaluate how individuals process visual…

Inclusive postsecondary education (IPSE) programs can provide young adults with IDD opportunities for training and experiences in continuing academic instruction, transition goals, independent living as well as employment. Parent readiness is an important aspect of having young adults embrace their increasing independence. While the prospective…

Case managers, often called support coordinators, are pivotal in the service system supporting people with intellectual/developmental disabilities (I/DD) and their families to have meaningful lives in the community, which includes access to community integrated employment. Support coordinators balance this priority, along with ensuring individual…

Inclusive post-secondary education (IPSE) programs for students with intellectual disability are growing rapidly, yet demand still outweighs the availability of programs. To increase the success and sustainability of IPSE, universities must understand stakeholders' perceptions of inclusion. The "Perspectives of Diversity and Inclusion…

Authors share an initial exploration of the pedagogy practiced at The Camphill School, specifically in relation to the integration of technology into its program. An approved private school situated in rural Pennsylvania, which caters to students on the autism spectrum, and others with different or additional physical and developmental…

Using an autoethnographic approach, this dissertation explores the path taken by a person who serves a unique population of individuals--people who not only have more than one disability, but in addition, are unable to communicate using verbal (spoken) speech. Starting with a recap of the history of the use and subsequent oppression of American…

The purpose of this study was to observe and implement strategies and adaptations in an arts program for adults with atypical communication due to developmental and intellectual disabilities. This study was conducted in the field using an action research approach with triangulated methods of data collection including semi-structured interviews,…

To meet current federal regulations and provide the opportunity for individuals to receive services in the least restrictive environments, states are focusing on providing day habilitation services in inclusive community environments, rather than traditional congregate facility-based programs. The two main services of day habilitation focus on…