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Transition to Adulthood of Adolescents with Profound Intellectual and Multiple Disabilities: Content Validation of the SGU-PIMD to Support Families
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Luitwieler, Nicole; Luijkx, Jorien; Stege, Heleen A.; Grootoonk, Anneke; Schans, Cees P.; Putten, Annette A. J.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2024
Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition…
Descriptors: Adolescents, Adolescent Development, Family Role, Severe Intellectual Disability
'It's Really Who They Are and What They Want': Staff Perspectives on Supporting Autonomy for Autistic Adults with Intellectual Disabilities
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Jackie Ryan; Heather M. Brown; Anne Borden; Christina Devlin; Adam Kedmy; Austin Lee; David B. Nicholas; Sandy Thompson-Hodgetts – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Autonomy is a crucial component of self-determination, yet it is limited for Autistic individuals, especially those with co-occurring intellectual disabilities. We explored how professionals supported Autistic people with intellectual disabilities' autonomy. Materials and Methods: This qualitative study used a community-based…
Descriptors: Personal Autonomy, Adults, Self Determination, Autism Spectrum Disorders
A Family Systems Perspective on Supporting Self-Determination in Young Adults with Intellectual and Developmental Disabilities
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Taylor, Whitney D.; Cobigo, Virginie; Ouellette-Kuntz, Hélène – Journal of Applied Research in Intellectual Disabilities, 2019
Background: This study explored the way families support self-determination in young adults with intellectual and developmental disabilities (IDD) during life transitions. Method: Qualitative case studies were conducted with two Canadian families who participated in semi-structured interviews and ethnographic observations every quarter for one…
Descriptors: Family Involvement, Self Determination, Young Adults, Intellectual Disability