Rett syndrome is a severe neurodevelopmental disorder that affects about 1 in 10,000 females. Clinical trials of disease modifying therapies are on the rise, but there are few psychometrically sound caregiver-reported outcome measures available to assess treatment benefit. We report on a new caregiver-reported outcome measure, the Rett Caregiver…

In recent years, and especially due to COVID-19, a large number of telehealth interventions have been implemented. The large amount of information requires a differential analysis with an emphasis on rurality and the practice of parents/caregivers in the care and attention of children. The objectives of this study were to synthesize the available…

We examined the effectiveness of coaching on caregiver implementation of responding to joint attention (RJA) intervention for toddlers with autism. We used a nonconcurrent multiple-baseline across participants single-case research design to examine the relation between coaching practices and caregivers' RJA intervention implementation behaviors.…

Background: Family carers of people with intellectual and developmental disabilities are at increased risk of stress and often face barriers to accessing appropriate supports. Peer support can enhance the effects of well-being interventions, yet research is limited regarding family carers' experiences within peer support roles. Method:…

Using games as part of the intervention and support process (sometimes referred to as 'gaming therapy') is an increasingly popular method of supporting autistic youth to develop social competencies and other skills because they are believed to be inherently motivating and fun for youth. Some emerging research has indicated that intervention…

Purpose: The purpose of the current study was to explore the use of a hybrid telehealth approach following a Teach-Model-Coach-Review intervention format as a means to increase caregivers' ability to use language facilitation techniques with their children diagnosed with expressive language delay (ELD) in need of early intervention (EI) services.…

Background: Staff supporting people with intellectual disabilities may experience work-related stress that adversely impacts their wellbeing and capacity to provide support. Acceptance and Commitment Training interventions like Promotion of Acceptance in Carers and Teachers (PACT) have been shown to be effective for reducing stress and promoting…

This mixed-methods study sought to determine the effectiveness of assessment hubs in re-integrating children at risk of school exclusion into mainstream school. First, the assessment hubs provided attendance and exclusion data for 39 children who attended the hubs (KS2, n = 11 and KS3, n = 28) between January 2020 and January 2022. Second, 23…

This case study examines the integration of a picture book app in an after-school program in Switzerland, focusing on challenges, benefits and chances of promoting reading as part of the after-school program through the perspectives of caregivers. The study explores the potential of digital media, particularly picture book apps, to enhance…

This scoping review analyzes empirical research studies focused on Early Intervention (EI) services, covered under Part C of the Individuals with Disabilities Education Act in the United States, for children birth-to-3 years old with significant support needs (SSNs). The purposes were to gauge the landscape of literature in this area, understand…

Caregivers can experience significant challenges following their child's autism diagnosis and often seek informational, relational and emotional support. Post-diagnostic support for caregivers has received relatively little research attention and represents a significant gap in the international evidence base. We used an iterative codesign process…

Purpose: This study aims to explore whether participation in employer-provided skills and learning programs can strengthen older workers' abilities to carry out their work in a meaningful way so that it increases work attractiveness and a willingness to remain in the current job position. Design/methodology/approach: A survey was distributed to…