Background: Psychological interventions need to be adapted for use with people with intellectual disabilities to ensure they are engaging, accessible and effective. Co-design allows the experiences of service users and stakeholders to actively shape and develop interventions, to ensure their accessibility. Method: An adapted model of Experience…

Background: People with intellectual disability are vulnerable to developing and experiencing pain, indeed more pain, due to comorbidities and secondary conditions. Their pain may also be underestimated or poorly managed, due to difficulties with verbal and non-verbal communication. Improved understanding could have positive implications for pain…

Introduction: The "Programma Perspectief" intervention aims to provide optimal support to people with profound intellectual and multiple disabilities. Knowledge concerning intervention fidelity is outdated and scarce as is typical for the support of persons with special needs. Methods: An survey amongst care professionals (n = 62)…

Background: The global rise in chronic health conditions highlights the importance of self-management in empowering people to actively participate in their healthcare. People with intellectual disabilities are disproportionately affected by these conditions and face barriers in accessing self-management interventions. Method: This scoping review…

Objective: The present study aimed to understand the effectiveness of natural setting interventions to increase the level of PA in older adults ([greater than or equal to] 40 years old) with intellectual disabilities. Method: Following PRISMA's most recent guidelines, a systematic review was used to synthesise research on PA interventions…

Background: Online exercise interventions can improve access to tailored programmes for individuals with intellectual disabilities (including Down syndrome). This paper aimed to describe best practices and provide recommendations for online physical activity or exercise programmes for this population. Method: Two research teams with extensive…

Background: This review aimed to synthesise the literature about interventions for parents of adolescents with intellectual disability, including parental experience of receiving interventions and intervention effectiveness. Methods: Eligible interventions aimed to improve parenting skills and/or parent-adolescent relationships, adolescent…

Background: People with neurodevelopmental disabilities are frequently prescribed or administered psychotropic medication, particularly to manage behaviours of concern. Reducing inappropriate psychotropic use has been the target of international research and policy for several decades. Methods: Six electronic databases were searched for…

Background: Asthma and respiratory diseases pose significant global health risks. Respiratory infections substantially impact individuals with Down syndrome, affecting their overall well-being. This study examines respiratory health risks associated with Down syndrome in Saudi Arabia. Method: A survey of 115 participants used convenience sampling…

Background: Parents in England with an intellectual disability may be eligible for support with parenting from Local Authority's Adult services under the Care Act (2014). Method: This study investigated how adult social workers support these parents through 18 interviews with managers and commissioners and focus groups with 52 social workers,…

Background: While there is now considerable research on parenting by persons with intellectual disabilities, most of this research comes from Western countries. A dearth of information exists about families headed by parents with intellectual disabilities from other countries. This paper summarises the state of research and practice in Japan,…

Background: People with Down syndrome (DS) are predisposed to challenges with executive functions (EF), which are crucial for adaptive outcomes and academic success. Early interventions targeting EF are therefore critical. The present study analysed Italian data on the acceptability, enjoyability and household implementation of EXPO (EXecutive…

Background: Family carers often lack support for their own well-being as they navigate diagnostic and early intervention services for intellectual and developmental disabilities. Methods: This study explored the emotional journey of carers during Early Positive Approaches to Support, an 8-week group program. Participants journaled their emotional…

Background: This review explored (1) what digital psychological wellbeing interventions for family carers of people with intellectual and developmental disabilities were reported in the literature, (2) evidence about their effectiveness, (3) factors affecting their implementation and (4) experiences of family carers who attend them. Methods: Seven…

Background: The Australian National Disability Insurance Scheme (NDIS) represents a significant shift in service funding for children with hereditary or congenital cognitive disabilities. This PRISMA-based scoping review identifies and maps the NDIS literature to display research gaps and priorities for this cohort. Method: Twenty-nine databases…