Background: Since 2010, there has been significant growth in the United States in the number of students with intellectual disability accessing higher education, driven by federal legislation and funding. Currently, over 340 institutions of higher education provide programs of study for students with intellectual disability. Of these programs, 134…

Background: Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood. Method: Caregivers (n…

The Annual Disability Statistics Compendium is a collection of important information about people with disabilities in each state of the United States. It includes data from multiple government agencies and programs. The Compendium gathers these statistics together, making it easy for everyone to find and use. In the Compendium is such information…

Background: Canadians with intellectual disabilities experience barriers in accessing federal government services and programmes. Evolving from established models of patient navigation, service navigation has emerged as a potential way to address systematic barriers. Methods: A scoping review was conducted with a search strategy implemented across…

Medicaid is a major insurer of autistic people. However, during the transition to adulthood, autistic individuals are more likely than people with intellectual disability to lose their Medicaid benefits. Individuals with intellectual disability may have greater success maintaining Medicaid coverage during this time because most states provide…

Estimates show that one in six children aged three through 17 in the United States have one or more developmental disabilities. Many early childhood education programs aim to improve early identification of children with developmental disabilities and increase family engagement, specifically Head Start and Early Head Start programs. The present…

Our study is the first to provide statistics on opioid use among U.S. Social Security Disability Insurance (SSDI) applicants. We use an innovative machine-learning method to identify opioids in open-ended text fields in SSDI administrative data. We find that more than 30% of applicants between 2007 and 2017 reported using one or more opioids, a…

Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…

Early intervention services are an important federally funded program for families with children under three years of age who may be diagnosed with or are at risk of developmental delay or disability. The program's impacts can be profound: Early intervention helps strengthen cognitive, motor, and language skills; reduces the likelihood of…

This study used a large administrative data set of Head Start programs across the United States, the Head Start Program Information Report (PIR), to explore disparities in program rates of screening, referral, and identification for early intervention between Migrant and Seasonal Head Start (MSHS) and Head Start (HS) programs. Results from…

Service coordinators (SCs) in Part C early intervention (EI) programs fulfill critical supportive roles assisting families in accessing and successfully navigating services needed for their infants/toddlers identified with delays or disabilities. However, evidence of effective training for SCs is limited. One state scaled up training in the…

Population-based research can identify eligibility patterns across e disabilities and cultures, and the Head Start ECLKC gathers relatively controlled data of students in the United States (U.S.) and Puerto Rico, providing an opportunity to directly compare cultures. We compared preschool diagnostic eligibility categories in the U.S. and Puerto…

In this article, we introduce the term "vulnerability to achievement stressors," which refers to differentially low achievement when shifts in the educational environment "stress" or threaten the capacity of an individual or a group of individuals to make academic progress. We also introduce a methodological framework for…

Background: Overprescribing of off-licence psychotropic medications, particularly antipsychotics, for challenging behaviours in people with intellectual disabilities without a psychiatric disorder is a significant public health concern. In the United Kingdom, the National Health Service England launched an initiative in 2016, 'STopping…

Background: The Maryland Department of Education participated in the USDA's Direct Certification with Medicaid (DC-M) pilot during the 2022-2023 school year. This program lets Medicaid-enrolled students automatically qualify for Free or Reduced-Price Meals (FARM) and incorporates Medicaid data into eligibility calculations for the Community…