Background: Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood. Method: Caregivers (n…

Estimates show that one in six children aged three through 17 in the United States have one or more developmental disabilities. Many early childhood education programs aim to improve early identification of children with developmental disabilities and increase family engagement, specifically Head Start and Early Head Start programs. The present…

Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…

This study assessed needs and outcomes for people with developmental disability (DD) to understand the socioeconomic status of this group prior to implementation of the Accessible Canada Act in June 2019. The 2017 Canadian Survey on Disability (CSD) was used to analyze data for a sample of individuals with self-reported disability. Data related to…

Early intervention services are an important federally funded program for families with children under three years of age who may be diagnosed with or are at risk of developmental delay or disability. The program's impacts can be profound: Early intervention helps strengthen cognitive, motor, and language skills; reduces the likelihood of…