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Valentine, Riley Clare – Sex Education: Sexuality, Society and Learning, 2023
Sex education rarely covers disability. This paper uses autoethnography to reflect on how being epileptic impacted the author's understanding of sex and sexuality. The paper grapples with disability narratives and internalised ableism surrounding sex. The paper seeks to engage with conceptions of "who" sex education is for, and how…
Descriptors: Sex Education, Epilepsy, Attitudes toward Disabilities, Social Bias
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Carly Hyde; Logan Shurtz; Nicole McDonald; Maria Pizzano; Charles A. Nelson; Elizabeth A. Thiele; Connie Kasar; Shafali Jeste – American Journal on Intellectual and Developmental Disabilities, 2025
Tuberous sclerosis complex (TSC) is a genetic condition characterized by both medical and neuropsychiatric diagnoses that emerge across the lifespan. As part of a clinical trial, caregivers of children with TSC were interviewed about their experiences navigating medical, school, and social services. Semistructured interviews (N = 20) with…
Descriptors: Genetic Disorders, Neuropsychology, Clinical Diagnosis, Control Groups