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Direct linkNic McKenzie; Brigit Mirfin-Veitch; Henrietta Trip; Jennifer Conder – Journal of Intellectual & Developmental Disability, 2024
Background: People with intellectual disabilities have traditionally been excluded from Advance Care (AC) planning. This study aimed to improve access to and the quality of AC planning for this community. Method: A Participatory Action Research study was led, and participated in, by co-researchers with intellectual disabilities and disability…
Descriptors: Death, Intellectual Disability, Long Range Planning, Quality Assurance
Hirose, Naoki; Morita, Kojiro; Jo, Taisuke; Hagiwara, Yasuhiro; Matsui, Hiroki; Fushimi, Kiyohide; Yasunaga, Hideo – Journal of Intellectual & Developmental Disability, 2022
Background: We examined the association between intellectual disabilities (ID) and pneumonia severity at admission. Methods: We extracted patients admitted to hospital for pneumonia from July 2010 to March 2018 using the Diagnosis Procedure Combination database. We measured pneumonia severity using the A-DROP system. After 1:4 cohort matching…
Descriptors: Intellectual Disability, Diseases, Hospitals, Patients
Kruithof, Kasper; Olsman, Erik; Nieuwenhuijse, Appolonia; Willems, Dick – Journal of Intellectual & Developmental Disability, 2022
Background: The life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing and parents express concerns about being possibly outlived by their child with PIMD. However, little is known about the nature of these concerns. Method: We interviewed 27 parents of persons with PIMD and analysed the data…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Parent Attitudes, Children
