This qualitative study used an inclusive and participatory research approach to examine the perspectives of people with intellectual and developmental disabilities (IDD) on instrumental supports. Instrumental supports include concrete and direct ways people assist others in solving a problem or accomplishing a task, including helping to access and…

This study's aim was to examine the impact of pandemic emergency Home- and Community-Based Services (HCBS) payments on the continuity and security of people with intellectual and developmental disabilities (IDD). Using a multilevel logistic regression, we analyzed secondary Personal Outcome Measures interviews from 738 people with IDD (March 2020…

Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…

This study assessed needs and outcomes for people with developmental disability (DD) to understand the socioeconomic status of this group prior to implementation of the Accessible Canada Act in June 2019. The 2017 Canadian Survey on Disability (CSD) was used to analyze data for a sample of individuals with self-reported disability. Data related to…

Both applied behavior analysis (ABA) professionals and occupational therapy (OT) professionals have vital roles on interprofessional teams serving autistic individuals and other developmental challenges. Existing literature highlights that biases and misconceptions regarding each other's practice methods may discourage collaboration among ABA and…

There are decades of research indicating ableism is extremely prominent. The aim of this study was to examine the relationships between disability prejudice and institutionalization of people with intellectual and developmental disabilities (IDD). This study had two research questions: (1) How does disability prejudice impact the number of people…

This article reports findings from a qualitative analyses of interviews with five first-generation immigrant Indian mothers caring for a child with a developmental disability in the United States. The interviews aimed to probe the reasons underlying maternal stress while dealing with their child's special educators and doctors. Thematic analyses…

People with intellectual or developmental disabilities (IDD) live in many different types of settings including homes of their own, with a family member, with a host or foster family, or in a provider owned or operated setting. Most live with a family member and receive informal supports from family members and friends. Some also receive supports…

This study explored teachers' perspectives of AT use, effectiveness of AT, elements teachers' take into consideration when selecting AT, barriers, and resources needed for effective use of AT with students with severe intellectual and developmental disabilities. In order to answer this study's research questions, I employed a sequential…

This manual was designed primarily for use by people with disabilities. The hope is that it is also useful for families, as well as service coordinators and providers who directly assist families and individuals with disabilities. The focus of this manual is to provide easy-to-read information about available resources, and to provide immediate…

The purpose of this study was to collect and explore the stories of Korean immigrant parents of young adults with developmental disabilities as they transition to adulthood and how their attitudes and perceptions of disabilities have an impact on their youths' post-school experiences. Qualitative in-depth interviews with five Korean immigrant…

This self-assessment tool was developed for those who wish to embark on state-wide governmental systems change to improve high school transition and employment outcomes for youth and young adults with intellectual and developmental disabilities (IDD). Its purpose is to aid in the development of a work plan that is based on a review of the state…

This manual was designed primarily for use by individuals with developmental disabilities and related conditions. It is hoped that it is also useful for families, as well as service coordinators and providers who directly assist families and individuals with developmental disabilities. The focus of this manual is to provide easy-to-read…

This "2018-2019 Interagency Autism Coordinating Committee (IACC) Strategic Plan Update" is the work of the IACC membership that was appointed under the Autism CARES Act of 2014. The Committee agreed that the "2016-2017 IACC Strategic Plan" reflected a comprehensive review of the state of the field and provided a set of 23 new…