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Experiences of Mothers of Children with Profound Intellectual and Multiple Disabilities in the Czech Republic
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Sedlácková, Dagmar; Kantor, Jirí; Dömischová, Ivona; Kantorová, Lucia – British Journal of Learning Disabilities, 2023
Background: The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods: Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic…
Descriptors: Experience, Mothers, Severe Disabilities, Severe Intellectual Disability
Parents' Tacit Knowledge of Their Child with Profound Intellectual and Multiple Disabilities: A Qualitative Study
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Kasper Kruithof; Maartje Hoogsteyns; Ilse Zaal-Schuller; Sylvia Huisman; Dick Willems; Appolonia Nieuwenhuijse – Journal of Intellectual & Developmental Disability, 2024
Background: Parents' tacit knowledge plays an important role in the care of persons with profound intellectual and multiple disabilities (PIMD). As little is known about its nature and use, we aimed to explore this parental tacit knowledge. Method: We conducted semi-structured interviews with parents (n = 11) about their tacit knowledge of their…
Descriptors: Parents, Parent Child Relationship, Knowledge Level, Children
Persons with Profound and Multiple Learning Disabilities as Subjects of Knowledge: Exploring the Possibilities of Empathy
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Synne Nese Skarsaune – British Journal of Learning Disabilities, 2024
Background: Persons with profound and multiple learning disabilities (PMLD) risk exclusion, both in research and as members of society. Because of their embodied communication, they face the challenges in being understood. Oftentimes, others speak on their behalf making inferences on what their perspective might be. Methods: Empathy is suggested…
Descriptors: Severe Disabilities, Multiple Disabilities, Learning Disabilities, Adults
From Living to Lived and Being-With: Exploring the Interaction Styles of Children and Staff towards a Child with Profound and Multiple Learning Disabilities
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Simmons, Ben – International Journal of Inclusive Education, 2021
'Profound and multiple learning disabilities' ('PMLD') is a term used in the UK to refer to children with extensive impairments to cognitive development. The majority of children with PMLD are taught in special schools where specialist interventions are deployed to help PMLD children progress through the preverbal stages of development. Despite…
Descriptors: Students with Disabilities, Severe Intellectual Disability, Multiple Disabilities, Inclusion