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An Australian Online Training and Support Program for Caregivers of Children and Youth with Fetal Alcohol Spectrum Disorder: Families Linking with Families
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Anita Gibbs; Julie Flanagan; Louise Gray – Journal of Intellectual & Developmental Disability, 2024
Background: Australia has limited supports to help families where Fetal Alcohol Spectrum Disorder (FASD) impacts children and young people. National Organisation for Fetal Alcohol Spectrum Disorder Australia (NOFASD), in conjunction with the University of Otago, New Zealand, piloted and established a 7-week online program to assist caregivers to…
Descriptors: Foreign Countries, Electronic Learning, Caregiver Role, Fetal Alcohol Syndrome
Parents' Initiative in Community-Based Support for Children with Intellectual and Developmental Disabilities: The "Ahada" Non-Profit Model
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Orly Ganany-Dagan – Journal of Intellectual & Developmental Disability, 2025
Background: The birth of a child with an intellectual or developmental disability inherently presents challenges to parents regarding the child's long-term future. This qualitative study examined the perceptions of parents who are kibbutz members, focusing on the non-profit organisation they established and the socioeconomic model they developed…
Descriptors: Intellectual Disability, Developmental Disabilities, Inclusion, Foreign Countries
Experiences of Parents Who Support a Family Member with Intellectual Disability and Challenging Behaviour: "This Is What I Deal with Every Single Day"
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Dreyfus, Shoshana; Dowse, Leanne – Journal of Intellectual & Developmental Disability, 2020
Background: Research into parents' experiences of living with a family member with intellectual disability and challenging behaviour does not specifically address what parents say about themselves and their lives. This paper explores "I-statements" parents made about their day-to-day actions in life with their family member. Methods:…
Descriptors: Family Relationship, Behavior Problems, Intellectual Disability, Parent Attitudes
Do They Agree? How Parents and Professionals Perceive the Support Provided to Persons with Profound Intellectual and Multiple Disabilities
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Jansen, Suzanne L. G.; van der Putten, Annette A. J.; Post, Wendy J.; Vlaskamp, Carla – Journal of Intellectual & Developmental Disability, 2018
Background: The aim of this study was to explore agreements in the way parents of a person with profound intellectual and multiple disabilities and professionals perceive the support in terms of its family-centredness in order to gain a better understanding of their collaboration. Method: An adapted version of the Dutch Measure of Processes of…
Descriptors: Parents, Parent Attitudes, Multiple Disabilities, Foreign Countries
Adaptation in Families Raising Children with Fetal Alcohol Spectrum Disorder. Part II: What Would Help
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Coons, Kelly D.; Watson, Shelley L.; Yantzi, Nicole M.; Schinke, Robert J. – Journal of Intellectual & Developmental Disability, 2018
Background: Our aim in this paper is to build upon the experience of family adaptation and to describe one unique stressor experienced by adoptive parents of children with fetal alcohol spectrum disorder (FASD) that may hinder successful family adaptation. Method: Fifty-one adoptive parents of children with FASD from 36 families in Ontario,…
Descriptors: Child Rearing, Fetal Alcohol Syndrome, Clinical Diagnosis, Family Relationship