Professionals play an important role in when and how families access autism services. Black families often experience disparate access to autism services compared to White families. Family Peer Advocates (FPAs) are professionals who have personal experience with the diagnostic process, school-based supports, and community-based services, and…

While there are opportunities for families to fulfill leadership roles in early intervention, families often report feeling disempowered and unprepared to become leaders. To this end, in this pilot study, we evaluated the effectiveness and feasibility of an 8-hour leadership program for 20 parents of children who are receiving, or recently…

Family-school partnership is an essential component of the special education process for children with intellectual and developmental disabilities (IDD). Latinx families especially face systemic barriers when participating in education decision-making for their children with IDD. However, few interventions have been developed to facilitate and…

Families who have children with delays or disabilities are often expected to become advocates for their children. Despite this inherent expectation, there is limited research available focused on advocacy during the early years (birth to three). The purpose of this study was to use qualitative inquiry, specifically semi-structured interviews, to…

Although family-centeredness is a tenet of early intervention, families often report struggling to meaningfully participate in decision-making. To increase family involvement, in the United States Parent Training and Information Centers (PTIs) and service coordinators are charged with educating and empowering families to advocate for their…

Researchers have long documented the importance of parent participation in the development and success of children in schools. Parent participation is a critical component in special education programming and is embedded in special education legal requirements in the US. However, navigating special education programming has proven particularly…

Parent training (i.e. group-based supports and psychoeducation aimed at parent as primary agent of change) in Autism Spectrum Disorders (autism) is well-documented as an Evidence-Based Intervention designed to increase advocacy, knowledge, and empowerment. While research on Parent Training acknowledges the cultural limitations, the field lacks…

Individuals with intellectual and developmental disabilities (IDD) experience difficulty with transitioning to competitive integrated employment following high school. Addressing this disparity in transitioning to competitive integrated employment can be supported through a high school transition program with community-based work experiences for…

Children with autism and their families often face challenges accessing early intervention and related services. African American children face additional challenges due to disparities in diagnoses and access to services. These disparities present a great need for parent advocacy to combat culturally insensitive service delivery and strained…

The Empowering Children with Hope and Opportunity (ECHO) program has collected data for 20 years. The ECHO staff has fallen short in using this data to clearly demonstrate any impacts and to engage in continuous improvement of the ECHO organization. Thus, the purpose of the current research project is to demonstrate how effective the counseling,…

Parents of children who are newly identified as deaf or hard of hearing (DHH) face many decisions surrounding communication and intervention, including where to receive early intervention (EI) services. This study explored the experiences and perspectives of parents of DHH children enrolled in a center-based, family-centered EI program focused on…

This study aims to illustrate the effectiveness of the programme of informative parent training which is about the rights of families of children with special educational needs (SEN), and which is presented via the direct instruction method. The research was designed in a semi-experimental model consisting of a single group pre-test and post-test…

Family-professional partnership is an essential component of the special education process for children with intellectual and/or developmental disabilities (IDD). However, many families face barriers to participation in the special education process. Latino families especially face systemic barriers when participating in educational…

Knowledge and identification of autism spectrum disorder (ASD) are increasing in Latin America, yet there are limited resources available to help families of children with ASD. For this study, researchers adapted and tested a parent educational program created for Latino immigrant parents of children with ASD in the United States to the needs of…

Although expected to be equal partners in the special education process, parents of children with disabilities often struggle to participate in individualized education program (IEP) meetings. Specifically, Latino parents of children with autism spectrum disorder (ASD) face systemic barriers occluding their participation and advocacy in IEP…