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Carly Moser; Meghan M. Burke; Leann Smith DaWalt; Julie Lounds Taylor – American Journal on Intellectual and Developmental Disabilities, 2025
Parent advocacy is important for the transition outcomes of autistic youth. However, it is unclear whether parent advocacy efforts support or stifle youths' self-determination. This study examined concurrent (n = 180) and longitudinal (n = 134) associations between parent advocacy and transition-aged autistic youths' self-determination (as…
Descriptors: Self Determination, Parent Role, Advocacy, Autism Spectrum Disorders
Meghan M. Burke; Chak Li; Zach Rossetti – Journal of Special Education, 2025
Parents of individuals with disabilities face many challenges in accessing appropriate school services for their offspring. While advocacy programs are becoming increasingly common, little is known about the nature of parent advocacy including its related constructs. The purpose of this study was to examine the associations between motivation,…
Descriptors: Parents, Children, Disabilities, Parent Attitudes
Meghan M. Burke; Samantha Goldman – Journal of Developmental and Physical Disabilities, 2025
Special education advocacy programs educate and empower individuals to become advocates for families of school-aged children with disabilities. Although special education advocacy programs are becoming more common across the globe, replication and wide scale implementation are needed to determine their credibility. The purpose of this study was to…
Descriptors: Special Education, Advocacy, Volunteers, Community Programs
Meghan M. Burke; Chak Li; Waifong Catherine Cheung; Amanda Johnston; Megan Best; Kelly Fulton; Abby Hardy; Zach Rossetti – Journal of Developmental and Physical Disabilities, 2025
Parent advocacy is often critical for families of individuals with disabilities. Prior research has suggested that parent advocacy occurs across three levels: individual, peer, and systemic. Yet, little empirical research has identified the correlates of advocacy for each level. For this study, we examined the survey responses of 246 parents of…
Descriptors: Correlation, Advocacy, Parents, Parent Child Relationship
Chak Li; W. Catherine Cheung; Meghan M. Burke; Julie Lounds Taylor; Leann S. DaWalt – Autism: The International Journal of Research and Practice, 2024
Parents of individuals with autism face many challenges in accessing appropriate services and supports for their offspring. Parents also play vital roles in advocating for their offspring's rights and needs. Furthermore, despite advocacy programs becoming increasingly common, it remains unclear how to best foster advocacy among parents of…
Descriptors: Autism Spectrum Disorders, Youth, Young Adults, Parents
Meghan M. Burke; Adriana Kaori Terol; Megan Best; W. Catherine Cheung; Abby Hardy – Journal of Developmental and Physical Disabilities, 2025
Increasingly, interventions are being developed and tested with families of color, including Latino families of transition-aged youth with autism. However, without culturally responsive measures, it is difficult to determine whether an intervention is effective. The purpose of this study was to improve the cultural responsiveness of measures…
Descriptors: Hispanic Americans, Family (Sociological Unit), Children, Autism Spectrum Disorders
Chak Li; Meghan M. Burke; Julie Lounds Taylor; Leann S. DaWalt; Zachary Rossetti – Intellectual and Developmental Disabilities, 2024
Advocacy has long been heralded as a way to create change for individuals with intellectual and developmental disabilities (IDD) and their families. However, without an established measure, it is difficult to accurately characterize advocacy activities. Drawing from extant research, the Advocacy Activities Scale was developed to assess three…
Descriptors: Advocacy, Students with Disabilities, Intellectual Disability, Developmental Disabilities
Janeth Aleman-Tovar; Meghan M. Burke; Edwin Monárrez; Nicole Espinosa Zaldivar – Autism: The International Journal of Research and Practice, 2025
Families of autistic youth often support their children's transition from adolescence to adulthood. During this time, families learn to navigate the complex shift from school-based to adult disability services. For Latinx (vs non-Latinx White) families of autistic youth, transition is especially difficult because of the systemic barriers (e.g.…
Descriptors: Advocacy, Hispanic Americans, Family (Sociological Unit), Autism Spectrum Disorders
Kelly Fulton; Adriana Kaori Terol; Abby Hardy; Meghan M. Burke – Topics in Early Childhood Special Education, 2025
Although family-centeredness is a tenet of early intervention, families often report struggling to meaningfully participate in decision-making. To increase family involvement, in the United States Parent Training and Information Centers (PTIs) and service coordinators are charged with educating and empowering families to advocate for their…
Descriptors: Early Intervention, Parent Attitudes, Parent Education, Parent Responsibility
Meghan M. Burke; W. Catherine Cheung; Julianna Kim – Intellectual and Developmental Disabilities, 2023
Systems navigation can be difficult, especially for low-resourced families (i.e., families who are "low income" or meet one of the following indicators: mother has a high school diploma or less; primary caregiver is unemployed; or the family receives governmental assistance). Navigators may help families access services; however, the…
Descriptors: Low Income Groups, Program Effectiveness, Services, Children
Abby Hardy; Kelly Fulton; Julianna Kim; Chak Li; W. Catherine Cheung; Meghan M. Burke; Zach Rossetti – Journal of Disability Policy Studies, 2025
In the last reauthorization of the U.S. Individuals with Disabilities Education Act (IDEA), families of individuals with disabilities provided less than 4% of the public comments. Given that families are equal partners in the decision-making process for students with disabilities, it is critical to understand their suggestions for IDEA. To this…
Descriptors: Educational Legislation, Equal Education, Federal Legislation, Students with Disabilities
Meghan M. Burke; Colleen Mercer; Saury Ramos-Torres; RaeAnne Lindsay; Isabelle Burakov – Intervention in School and Clinic, 2025
Although more than 1.38 million students receive accommodations and supports accorded by Section 504 of the Rehabilitation Act of 1973, many teachers report not knowing about their responsibilities under Section 504. The purpose of this article is to educate teachers about Section 504. Specifically, teachers will learn about ways to evaluate and…
Descriptors: Federal Legislation, Students with Disabilities, Academic Accommodations (Disabilities), Knowledge Level
Samantha E. Goldman; Meghan M. Burke – Review Journal of Autism and Developmental Disorders, 2019
Several different types of parent involvement with schools have been identified in the special education and general education literature, including (a) advocacy, (b) collaborative partnership, (c) home-school communication, and (d) school-based participation. However, it is unclear which types of involvement are addressed in the literature and…
Descriptors: Autism Spectrum Disorders, Family School Relationship, Parent Participation, Advocacy

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