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Age-Related Changes in Behavioural and Emotional Problems in Smith-Magenis Syndrome Measured with the Developmental Behavior Checklist
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Nag, Heidi Elisabeth; Naerland, Terje – Journal of Intellectual Disabilities, 2021
Smith-Magenis syndrome (SMS) is a genetic syndrome most often caused by a deletion on chromosome 17 or more rarely by a mutation in the retinoic acid-induced 1 gene. The aim of this study was to investigate the Developmental Behavior Checklist (DBC) profile of persons with SMS and the associations between behavioural and emotional problems, age,…
Descriptors: Genetic Disorders, Behavior Problems, Emotional Problems, Age Differences
Maternal Parenting Stress in Families with a Child with Angelman Syndrome or Prader-Willi Syndrome
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Wulffaert, Josette; Scholte, Evert M.; Van Berckelaer-Onnes, Ina A. – Journal of Intellectual & Developmental Disability, 2010
Background: Parenting stress was investigated in mothers with a child with Angelman syndrome (AS) or Prader-Willi syndrome (PWS), which are genetically related. Method: Mothers of 24 children with AS and 23 children with PWS (2-12 years) completed the Nijmegen Parenting Stress Index-Short, Developmental Behaviour Checklist, and Vineland Screener…
Descriptors: Mothers, Mental Retardation, Family Programs, Child Rearing