Background: Individuals with Down syndrome are known to have high rates of hearing loss, but it is unclear how this impacts their ability to communicate and function in real-world environments. Methods: Sixteen English-speaking and Spanish-speaking mothers of individuals with Down syndrome ages 6-40 years participated in individual,…

Background: Life expectancy for people with Down syndrome is increasing, but older adults with Down syndrome are at greater risk of developing certain pathologies associated with ageing. When ageing parents can no longer look after their child with Down syndrome, their other children are often expected to shoulder this responsibility. Method: We…

Parents of children with Down syndrome (DS) were interviewed about if their experiences raising their children matched their initial assumptions about parenting a child with DS. A dominant narrative was identified, wherein most parents described initially having negative assumptions, which did not come to fruition; parenting their child was not…

This applied dissertation was designed to improve the effectiveness of professional educators in using the methodology of functional behavior assessment (FBA) and function assessment-based intervention (FABI) to reduce challenging behaviors exhibited by students with Down syndrome (DS), or a dual diagnosis of Down syndrome and autism spectrum…

This phenomenological research study highlights the voiced needs and desires of individuals with Down syndrome, aged 21-30, experiencing the phenomenon of identifying as neurodiverse while living in a world designed for the neurotypical. The study provides a deeper understanding of lived experiences of individuals with Down syndrome as they enter…

Background: To document whether the sociocognitive peculiarities of people with Down Syndrome impact the construction of attachment at different ages, a systematic review of the literature was carried out. Method: This review followed the Preferred Reporting Items for Systematic Reviews and MetaAnalyses, was conducted on three databases: psycINFO,…

Background: Social abilities include interpersonal skills, interaction, and social responsibility. The nature of these abilities has not been explored in young people with Down syndrome (DS) during the social isolation of the COVID-19 pandemic. Method: The aim of this online study was to describe the social profile of a group of 30 Mexican people…

Flashbulb memories are vivid and salient memories for the moment one hears about a surprising, emotional, and significant event. The current research examined flashbulb memories for a loved one's medical diagnosis, focusing on individual and situational factors associated with memory development and endurance over time. An online survey collected…

Proper treatment of developmental disabilities requires health workers to have adequate knowledge of etiology and referral procedures. There is a dearth of research on knowledge of developmental disabilities among health workers in Ghana. The purpose of this study was to document knowledge about developmental disorders, causes, and referral…

The COVID-19 pandemic and its demands of social distancing have created challenges in the lives of children/adolescents with developmental disabilities and their families, which would change aspects of children's functioning. The objective of this study was to evaluate changes in some components of functioning of children/adolescents with…

Transition from primary to secondary school is an educational milestone that coincides with other key developmental changes associated with the onset of adolescence. Although previous studies have examined the impact of school transition on autistic students, no studies thus far have examined whether the impacts experienced are similar across…

Investigate the association between gastrointestinal (GI) issues and psychometric scores among children with developmental delays and typical development. We examined the association between GI issues and the Mullen Scale of Early Learning (MSEL), Vineland Adaptive Behavior Subscales (VABS), and Aberrant Behavior Checklist (ABC) scores from…

Down syndrome (DS) research is advancing rapidly, yet efforts have raised ethical questions. This mixed methods study describes views of people with DS (self-advocates) and their parents regarding medical interventions for DS. Responses from 35/171 (20.5%) self-advocates and 430/867 (49.6%) parents showed the majority of self-advocates were glad…

Background: Transitioning from paediatric medical care to adult care is a challenging process for children, parents and healthcare professionals. The aim of this study was to explore the experiences, concerns and needs of parents of children with Down syndrome and of professionals regarding this transition. Method: A qualitative study was…

This study was aimed at investigating the impact of music on exercise performance and affective response to exercise in individuals with Down syndrome (DS). Twelve individuals with DS completed a treadmill walking protocol in both music and no music conditions. Heart rate (HR), walking steps, rate of perceived exertion (RPE), and enjoyment scores…