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Learning to Live with Ambiguity: Rethinking Ambiguous Loss for Mothers of Children with Disabilities
Lee, Yoon Joo; Park, Hye Jun; Lee, Seung Yeon – SAGE Open, 2022
The purpose of this study was to explore the mothering experiences of children with disabilities. The theory of ambiguous loss was applied to interpret the meanings that mothers give to the process of caregiving and the ways they stay proactive in the midst of challenges. Eleven mothers of children ages 6 to 35 with various disabilities…
Descriptors: Mothers, Child Rearing, Disabilities, Parent Attitudes
Sangha, Simrit; Anderson, Joanna K.; Burn, Anne-Marie – Journal of Intellectual & Developmental Disability, 2023
Background: Despite a growing body of literature investigating the impact of disabilities on family relationships, the experiences of ethnic minorities remain underexplored. Method: Semi-structured online interviews were conducted with eight young people (aged 18-28 years) with disabled sibling(s) within an immigrant family to understand how this…
Descriptors: Foreign Countries, Disabilities, Young Adults, Siblings
Mittan, Robert J. – Exceptional Parent, 2010
Having a disability or chronic health condition saddles the person with more than just the physical complaint. One has to struggle with the social meaning of that disorder as well. Often society is not very accepting of illness and disability and the person affected becomes stigmatized as a result. Stigma is a common problem among the disabled…
Descriptors: Chronic Illness, Disabilities, Social Bias, Social Attitudes
Boerner, Kathrin; Wang, Shu-Wen – International Journal of Aging and Human Development, 2010
This study examined the impact of loss of vision on important life domains depending on life context. The sample included two groups dealing with vision impairment: middle-aged (n = 44) and older adults (n = 107). Findings showed important group differences in extent, type, and facet of life changes across and within four life domains:…
Descriptors: Vision, Adults, Older Adults, Visual Impairments
Folkestad, Helge; Folkestad, Lone – Intellectual and Developmental Disabilities, 2008
Caring for a person may result in emotions for that person. When Helen died, her staff experienced deep sorrow. The authors interviewed the staff, asking to what extent R. Bogdan and S. J. Taylor's (1987) sociology of acceptance could help them understand how accepting ties are made and maintained. Because R. Bogdan and S. J. Taylor mainly looked…
Descriptors: Coping, Grief, Emotional Response, Stress Management
Peralta, Feli; Arellano, Araceli – Electronic Journal of Research in Educational Psychology, 2010
Introduction: This study raises the need to promote family-centered intervention approaches, aimed toward improving the family's quality of life, the empowerment of all its members, and the development of self-determination skills. Method: To this end, we review the studies on intellectual disabilities, self-determination and family-centered…
Descriptors: Intervention, Family Programs, Quality of Life, Disabilities
Shields, Nora – Physical & Occupational Therapy in Pediatrics, 2009
There is a growing recognition of the importance of self-concept in the pediatric rehabilitation research literature. There also is confusion and inconsistency in the definitions of and the terminology used to describe self-concept. What is agreed is that self-concept is multidimensional, comprising a child's perception of their personal…
Descriptors: Obesity, Physical Activities, Self Concept, Occupational Therapy
Kreisle, Beate – Reclaiming Children and Youth, 2008
Ongoing traumatising life events can often cause a person to the have physical or emotional characteristics of one who is mentally disabled or autistic, making it easy to form a wrong first impression. This article presents the story of one such person in a Positive Peer Culture program in a group treatment facility in Germany. In Positive Peer…
Descriptors: Foreign Countries, Psychological Patterns, Interpersonal Relationship, Coping
Timko, Christine; Cronkite, Ruth C.; Swindle, Ralph; Robinson, Rebecca L.; Sutkowi, Anne; Moos, Rudolf H. – Child Psychiatry and Human Development, 2009
This study examined whether having a depressed parent intensifies the secondary deficits that often co-occur with offspring's depression symptoms. The sample was adult offspring of parents who had been diagnosed with depression 23 years earlier (N = 143) and demographically matched nondepressed parents (N = 197). Respondents completed mailed…
Descriptors: Questionnaires, Depression (Psychology), Parents, Parent Influence
Sze, Susan; Valentin, Sylvia – Education, 2007
Children with disabilities often experience negative feedback more so than their classmates. Experts in the field list improved self-esteem as treatment for the child's academic, social and behavioral problems. However, recent studies have shown that children with disabilities do not necessarily have poor self images, and may have a high…
Descriptors: Disabilities, Self Concept, Children, Feedback (Response)
Peer reviewedChang, Bei-Hung; Noonan, Anne E.; Tennstedt, Sharon L. – Gerontologist, 1998
Examines how religious/spiritual coping was related to caregiving and psychological distress among informal caregivers (N=127) to community-residing disabled elders. Caregivers who used religious or spiritual beliefs to cope with caregiving had a better relationship with care recipients, which was associated with lower levels of depression and…
Descriptors: Caregiver Role, Coping, Depression (Psychology), Disabilities
Weitzner, Shari – Exceptional Parent, 1989
This article, written from the perspective of a special educator who has a daughter with mental retardation, describes the marital stress that having a child with a disability brings about. The article also notes the importance of parents getting away by themselves and offers suggestions for accomplishing this. (JDD)
Descriptors: Coping, Disabilities, Family Life, Interpersonal Relationship
Forlin, Chris; Jobling, Anne; Carroll, Annemaree – Journal of International Special Needs Education, 2001
A study investigated the differing interactional patterns of 1197 Australian preservice teachers with people with disabilities. Results indicate that even though preservice teachers reported being fearful and concerned about their own vulnerability, these concerns did not appear to cause them excess discomfort in their contact with people with…
Descriptors: Attitudes toward Disabilities, Coping, Disabilities, Elementary Secondary Education
Behr, Shirley – 1990
This literature review addresses perceived positive contributions of disabled persons to their families and proposes a new framework for such research. Considered first is the theoretical framework underlying Family Stress and Coping Theory, specifically the ABCX model of R. Hill and its modifications. Next, family research trends in the…
Descriptors: Adjustment (to Environment), Coping, Disabilities, Emotional Adjustment
Wang, Mian; Mannan, Hasheem; Poston, Denise; Turnbull, Ann P.; Summers, Jean Ann – Research and Practice for Persons with Severe Disabilities (RPSD), 2004
The concept of family quality of life has emerged as an important outcome of service provision for children with disabilities and their families. In this article, we report families' perceptions of their advocacy efforts and the impact of these efforts on their family quality of life. A total of 104 family respondents participated in focus groups…
Descriptors: Quality of Life, Focus Groups, Advocacy, Disabilities
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