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Direct linkVan Remmerden, M. C.; Hoogland, L.; Mous, S. E.; Dierckx, B.; Coesmans, M.; Moll, H. A.; Lubbers, K.; Lincken, C. R.; Van Eeghen, A. M. – Journal of Autism and Developmental Disorders, 2020
Little is known about care needs of young adults with Fragile X Syndrome (FXS). Patient-driven information is needed to improve understanding and support of young adults with FXS. A qualitative study was performed in 5 young adult patients (aged 18-30), and 33 parents of young adults. Concerns and care needs were categorized using the…
Descriptors: Genetic Disorders, Intellectual Disability, Young Adults, Classification
