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Direct linkVan Remmerden, M. C.; Hoogland, L.; Mous, S. E.; Dierckx, B.; Coesmans, M.; Moll, H. A.; Lubbers, K.; Lincken, C. R.; Van Eeghen, A. M. – Journal of Autism and Developmental Disorders, 2020
Little is known about care needs of young adults with Fragile X Syndrome (FXS). Patient-driven information is needed to improve understanding and support of young adults with FXS. A qualitative study was performed in 5 young adult patients (aged 18-30), and 33 parents of young adults. Concerns and care needs were categorized using the…
Descriptors: Genetic Disorders, Intellectual Disability, Young Adults, Classification
Download full textNational Center on Deaf-Blindness, 2019
This report is the 33rd edition of the annual National Child Count of Children and Youth Who Are Deaf-Blind, the first and longest running registry and knowledge base of children who are deaf-blind in the world. Begun in 1986 on behalf of the U.S. Department of Education, it represents a collaborative effort between the National Center on…
Descriptors: Deaf Blind, Students with Disabilities, Student Needs, Children
Hall, Scott S.; Lightbody, Amy A.; Hirt, Melissa; Rezvani, Ava; Reiss, Allan L. – Journal of the American Academy of Child & Adolescent Psychiatry, 2010
Objective: Many investigators now routinely classify children with fragile X syndrome (FXS) according to whether or not they also meet diagnostic criteria for autism. To determine whether this classification is appropriate, we examined the profiles of autistic behaviors shown by boys and girls with FXS. Method: Individuals with FXS, aged 5 to 25…
Descriptors: Genetic Disorders, Mental Retardation, Congenital Impairments, Autism
