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Self-Advocates with Down Syndrome Research the Lived Experiences of COVID-19 Lockdowns in Aotearoa New Zealand
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Vaccarino, Franco; Vaccarino, Zandra; Armstrong, Duncan; Borkin, Edward; Hewitt, Alexandra; Oswin, Andrew; Quick, Caroline; Smith, Erin; Glew, Averill – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Individuals with Down syndrome are particularly vulnerable to COVID-19 because they are recognised as significantly immunocompromised. Yet their voices regarding their lived experiences of pandemic lockdowns have not been sought or heard. Aim: This study aims to describe the lived experiences of people with Down syndrome during the…
Descriptors: Down Syndrome, COVID-19, Pandemics, At Risk Persons
A Qualitative Study about Quality of Life in Brazilian Families with Children Who Have Severe or Profound Intellectual Disability
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Rodrigues, Stephania A.; Fontanella, Bruno J. B.; Avó, Lucimar R. S.; Germano, Carla M. R.; Melo, Débora G. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: This study investigated the psychocultural perspectives concerning family quality of life among Brazilian families with children who have severe or profound intellectual disability. Methods: Individual in-depth semi-structured interviews conducted with 15 mothers, selected by convenience, were analysed using a categorical thematic…
Descriptors: Foreign Countries, Quality of Life, Severe Intellectual Disability, Family Environment
"Being There": The Experiences of Staff in Dealing with Matters of Dying and Death in Services for People with Intellectual Disabilities
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Todd, Stuart – Journal of Applied Research in Intellectual Disabilities, 2013
Background: Research on staffed housing for people with intellectual disability has identified the challenges in achieving positive quality of life outcomes. However, a less well considered dimension of such services is that they are places of living and dying. This paper looks at the experiences of staff in dealing with issues of death and dying.…
Descriptors: Mental Retardation, Death, Caregivers, Coping