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"I Don't Have to Say That They Are Dying Now": Professionals' Perspectives on Death-Related Communication with Children and Young People with Intellectual Disabilities in Paediatric Palliative Care in Germany
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Maria Bonin; Helena Taubner – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Children and young people with life-limiting conditions in palliative care often have some degree of intellectual disability. Literature about death communication with this patient group is limited. This study aimed to explore professionals' perspectives on death communication with children and young people with intellectual…
Descriptors: Death, Children, Youth, Interpersonal Communication
The Life Expectancy of People with Intellectual Disabilities in Germany
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Dieckmann, Friedrich; Giovis, Christos; Offergeld, Jana – Journal of Applied Research in Intellectual Disabilities, 2015
Background: This study presents age group-specific mortality rates and the average life expectancy of people with intellectual disabilities in Germany. Method: For two samples from Westphalia-Lippe and Baden-Wuerttemberg, person-related data for the years 2007-2009 were analysed. Age group-specific mortality rates were estimated by exponential…
Descriptors: Foreign Countries, Mortality Rate, Death, Intellectual Disciplines